Originally Posted by
aewaustin
Chris - Only side effects are that I have night sweats the night of the infusion, so much that I have had to change clothes twice during the night.
drz - I was not on any medicines when I got the first iv and was so weak that I could hardly function after 3pm each day and it was a really hard time as I was getting weaker each week. I went rapidly downhill for the month of March, and then got the first infusion 3/25/11. When I had the first iv it made a big difference in 24 hours, so I was thrilled, two weeks later I was able to walk/run 3 miles at our local lake (previously I had not been able to do anything physical for two months, and I am a runner so that was hard). Now about 4 weeks in I am totally functional, back at work full time and am working out every day. BUT my labs have not changed, I still have 3+ blood in my UA's, that is the only test to show if my Weg's is active. So remission is a bit away for me, but just wanted to explain that even though I am not in remission, the RTX truly has been a miracle for me... My doctor said that she is looking at the 8 week mark for my labs to change...
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