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Thread: Dentist Advice

  1. #41
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    if I have to do some dental treatment Im taking antibiotic for one week to avoid infections
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #42
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    I hope you don't have a major infection and it clears up soon.
    Phil Berggren, dx 2003

  3. #43
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    Quote Originally Posted by Alysia View Post
    if I have to do some dental treatment I'm taking antibiotic for one week to avoid infections
    The doctors and dentist have also recommended I stop for a day before and day after the azathioprine or what ever immuno-suppressant i was taking before such things as routine cleanings or other dental work or surgery with risk of infection.
    Knowledge is power! Wisdom is using it to make good decisions!

  4. #44
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    My dentist also said that even after being off them for 2 or more years can still be of concern.
    Phil Berggren, dx 2003

  5. #45
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    I am having issues with my teeth as well. I can assume then that this is a side effect of WG and/or meds that I am on? I was kinda kidding when I told my now ex boyfriend that I will be a fat/bald/toothless, old lady soon. (fat from prednison, bald from cytoxin(chemo med) and now really toothless. Kind of a scary thought, not so funny afterall.

  6. #46
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    Quote Originally Posted by Joyce3692 View Post
    I am having issues with my teeth as well. I can assume then that this is a side effect of WG and/or meds that I am on? I was kinda kidding when I told my now ex boyfriend that I will be a fat/bald/toothless, old lady soon. (fat from prednison, bald from cytoxin(chemo med) and now really toothless. Kind of a scary thought, not so funny afterall.
    A good dentist is also one of the doctors we need. I have had frequent dental contact for years because of diabetes which is also bad for teeth but Wegs kicked all my dental problems up a couple notches.
    Knowledge is power! Wisdom is using it to make good decisions!

  7. #47
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    Default Dental advice

    I am a US trained dental professional. It is difficult to translate standards from one country to the next. To be honest, most adults world-wide have chronic dental (periodontal) issues they are not aware of until they are advanced, and finding good treatment is difficult. Weg, meds like bisphosphonates and complications such as smoking or diabetes complicates the problem.

    Simple advice: If you don't floss daily, under the gum line, start now. Brush well at least twice daily. Healthy gums do not bleed. If they do, you have gingivitis or more advanced gum disease. Blood thinners do not make gums bleed unless they are already infected.
    Get your teeth cleaned well and often (every 6 months is a minimum. More often if you have gum problems). It is usually NOT necessary to premedicate with antibiotics. Repeat..it is NOT necessary to premed w/ antibiotics unless you are severely immunosuppressed (as in nadir for cancer treatment--in which event you should not be going to the dentist or shopping mall for that matter) or have an actual artificial heart valve or a new prosthetic joint).

    Osteonecrosis of the jaw is a rare complication of long term bisphosphonate (usually IV for cancer treatment) use. It is more frequent in those that have additional risk factors such as uncontrolled diabetes, history of smoking or severe long term immunosuppression. Most on this site are not severely immunosuppressed, but may be actually dealing with underdiagnosed existing or long standing periodontal disease. Periodontal disease is still not diagnosed or addressed well internationally. It can cause problems if one is ill, but as mentioned previously...actual osteonecrosis is rare. An existing dental infection left untreated is NOT a good option out of fear of possible necrosis. Seek a specialist if available.

    Good luck to those with dental ailments!! I wish I could wave my dental fairy wand over anyone with fear, pain or problems.

    On a separate, but very good note, my daughter Alison (Crohn's '99, Weg '06..treated primarily with Rituximab) is still in what appears to be a sustained remission. White cells are a bit off, but her last infusion was ~1.5years ago, and no flares as of yet. Infections are at a minimum. We pray for continued good health!!

    My best to all!!
    Jane, mom of Alison (aka, Palmyra...my favorite mountain peak in Colorado)

  8. #48
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    I agree with what you say above.I've had several surgeries over the last couple of years. As you say none of the treatment was done without WG consultants permission. By choose I have sedation because of breathing through my nose to. Before surgery I have a weeks anti b and then iv anti b during with preds. All my treatment has been done by a special dentist surgeon and a registrar has been reporting my case as part of her specialist training. My next surgery is 14th August !!!. I also do not have to change my medication to be able to do this, They are very supportive ,always ring the next day to check things are ok. Hopefully this will be my last major surgery. x x

  9. #49
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    I certainly hope it is your last surgery for a VERY long time Dee!! It sounds as if you have quite the great team established for your care. Best wishes to you, and as your avatar states, "Never give up!"

    ~JT

  10. #50
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    Hopefully I will only have to go to have my roots refilled every six to nine months after this surgery x x

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