Please accept that I am SO VERY happy you've achieved such a healthy status in such a short period of time. But, I too feel the need to add that I feel slighted by the notion that a positive attitude can change the course of this disease. I was diagnosed one month after you, and to this day, I continue struggling with drugs that are not working to control my WG. The cytoxan you received, while an evil drug, did its job of ceasing your wg activity rapidly. When the "heavy hitting" drugs are not the first line of attack, getting wg into remission does not come quickly or easily.
At diagnosis, I was literally elated to finally have a diagnosis! My spirits were good, even though I was experiencing a horrifying and excruciating ear infection. I was finally going to be treated, and be well!!! Of course, that's not what happened. Now, it's 5 months later, and I'm still on 20mg of pred, among other drugs. I look like hell & feel like hell much of the time. Daily life is a roller coaster of emotions. Most days I'm very positive - I tell myself this is temporary.....we'll find the right drug.........I'll lose the weight, and the fat face (which I can't stand to look at), and finally feel better. My husband recently told me that he doesn't know how I'm holding it together so well. But, the truth is, this disease is really getting me down.
So while I agree that a positive attitude is always preferable, and will certainly open doors for us in every aspect of our lives, I also know that no amount of positive attitude is going to send this disease into remission. Each of us requires the perfect cocktail of drugs for our particular situation, and skilled doctors to make it all happen.
On a positive note, I will be changing drugs AGAIN. This time to Rituxan, and I hope to be healthy in no time!!! PMA, right?
Continued good health to everyone who has achieved it before me! And I hope to join you soon!
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