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Thread: A Good Day with Good News

  1. #11
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    That's great news Marta. As you have probably read elsewhere my two rtx infusions had a similar effect to yours. My bloods have gone to pretty much 'normal' in 3 weeks. I feel so much better too - nothing is worse than the two weekly cyclophosphamide infusions and the susequent side effects that we have been struggling with for the past 5 months. Not sure I have got too much energy back yet but hopefully that will come with time.

    Saw my rheumy last week, he was almost jumping with joy! He had been talking to the rtx salesman who told him that sometimes rtx can take 3 months, and in some cases 6 months, before it takes effect!

    I am self injecting mtx now and just started reducing the pred from 15mg.

  2. #12
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    Great news Marta and pwc51!

  3. #13
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    Wonderful to hear, pwc51!

  4. #14
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    Marta and pwc51 - great news on having success with Rtx. Just like Marta, I've been feeling pretty much normal these days and find that I haven't been checking the forum too often because I've been busy living my old life. I'm starting my pred decrease 1mg/mth and am at 8mg. Funny, this time round I don't seem to be having any side affects - not getting sick about 4-5 days after 1mg decrease - do I dare say the word remission!

    Live it up!

  5. #15
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    Good deal for both of you! I had blood tests today and I'm hoping to see my c-reactive go down. We'll see.....

  6. #16
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    Glad to hear you're doing so well, Gurinder.

    Good luck to you, vdub!

  7. #17
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    Quote Originally Posted by Geoff View Post
    Great News Marta!!!

    But aren't you overstepping the mark even with your confidence?

    Are you going to do this with the power of thought, levitation or smoke and mirrors?
    Ha ha Geoff, apparently I was overstepping and the smoke and mirrors didn't work. I bought the wrong bed frame (turned out to not even be a bed frame - arrrghhh Ikea) so I just painted her room and culled the herd of toys and books. That in itself was epic.

    Thanks to you all for your amazing support and cyber friendship. I dream a dream where we all meet one day and have a killer party.

  8. #18
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    congrat...be careful ...don t over do it and wake up the beast
    Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!

    My mojo for today.....gonna be johnny apple seed and just keep planting
    Lisa Marie
    The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!

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