Any Advice Welcomed! Just Diagnosed!

[vdub]

how do we know when the adrenals turn back on?

Look up Addison's Disease. That's how you will feel when they haven't turned on. So if you don't have any Addison symptoms, then they might be turning on....

[Rose Cozzette]

Look up Addison's Disease. That's how you will feel when they haven't turned on. So if you don't have any Addison symptoms, then they might be turning on....

ok thanks.

[Sangye]

You won't necessarily feel that bad though. When I was off pred for 2.5 years and my adrenals weren't on I didn't have most of those symptoms. My adrenals were probably barely functioning--just enough to keep me alive--unlike Addison's where there is no function at all.

[Rose Cozzette]

You won't necessarily feel that bad though. When I was off pred for 2.5 years and my adrenals weren't on I didn't have most of those symptoms. My adrenals were probably barely functioning--just enough to keep me alive--unlike Addison's where there is no function at all.

I llooked up addisons disease and it seems that the abrupt stop of preds can cause secondary adrenal disease, thus why to do it so slowly. I guess we know if the adrenals are working by our energy level increasing. confusing for us w/kidney problems as shuldnt increase salt which is part of treatment. guess we are just a puzzle but I have all these questions. ???

[Rose Cozzette]

You won't necessarily feel that bad though. When I was off pred for 2.5 years and my adrenals weren't on I didn't have most of those symptoms. My adrenals were probably barely functioning--just enough to keep me alive--unlike Addison's where there is no function at all.

forgot to ask you if you got treatment for adrenal insufficiency when yu were off preds.

[vdub]

Sangye is right... It's just an indicator... Things to look for as if you don't already have enough issues to wonder where this or that pain came from.... :-)

[Sangye]

The whole time I was off pred I knew something wasn't right. None of my docs believed me, though, including Dr Seo. They all said if my adrenals were off I'd be dead. That is true if the adrenals are completely non-functional. But a trickle of function doesn't mean they're fine. They all said the undetectable AM Cortisol must have been an error.

It wasn't until I tapered too fast last year and felt exactly the way I had felt for 2.5 yrs that I realized my adrenals had been off that whole time.

[vdub]

The whole endocrine system is nothing to mess with. Surprising the system works at all, especially with it's tri-axis type behavior.... Pretty remarkable that even a healthy person is able to live from one day to the next.....

[Rose Cozzette]

The whole endocrine system is nothing to mess with. Surprising the system works at all, especially with it's tri-axis type behavior.... Pretty remarkable that even a healthy person is able to live from one day to the next.....

boy, you got that right, our systems are so complex. and our bodies are assailed and assaulted daily by hundreds of toxins etc. cant really take the body for granted, its full of surprises!

[Rose Cozzette]

had a migraine yesterday and had not had one in a looong time, since before I got sick. does this mean my system is getting back to normal? lol