I appreciate all you have said. I did read so much stuff on the internet. . The information I read scared the crap out of me. Everything was stating that if left untreated for the first year he had a 20% survival rate. No ones life is any more important then the next, but the thought of losing my husband is terrifying! As it has been stated this is VERY new to us. One question I have is.....Is a Lung Specialist suffecient? Or should we go ahead and look for a WEGS specialist? I know he needs to see the Lung Specialist and have the CT taken care of BUT should I research the closest WEG specialist and contact them on my own?
I'm not sure if they did an urinalys or not.
The weight loss has been about 7lbs in 3 weeks. . He is a pretty healthy person (Weight wise)
I can honestly say that reading the post and threads on here have made me feel more at ease with a lot of things. I totally understand that it is a life threatening disease, but I have read some incredible recovery stories as well.
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