Thinking...is there any famous person with WG?

**NicShaf** · 04-07-2011, 09:18 AM

Well there's a solution, one of us needs to become famous! Anyone have a talent we can exploit for Wegs research and awareness?

**drz** · 04-07-2011, 09:26 AM

Originally Posted by NicShaf

Well there's a solution, one of us needs to become famous! Anyone have a talent we can exploit for Wegs research and awareness?

How about a winner on American Idol? They can become rich and famous and donate millions to
Weg research too.

**pberggren1** · 04-07-2011, 09:38 AM

I think Marta can still whistle through her ears.

**freakyschizogirl** · 04-11-2011, 06:42 AM

I can whistle through my nose if that helps?

**LisaMarie** · 04-11-2011, 11:10 AM

I think if we could get one of us on extreme home make over....it would make a big difference.....someone would get a diseaze proper home and Wegener.s would get awareness and maybe funding for research...any body know someone with a need like that?

**NicShaf** · 04-11-2011, 11:11 AM

Nose...ears...we can get a little group together

**pberggren1** · 04-11-2011, 11:11 AM

We are sort of in that boat but we are in Canada.

**LisaMarie** · 04-11-2011, 11:14 AM

Phil
they may do Canada..we could try

**pberggren1** · 04-11-2011, 11:17 AM

Ya, we have a leaky basement, bad windows and roof, and poorly insulated walls. Wiring and plumbing are somewhat of an issue as well. But we could have it a lot worse. We are blessed to have such a good home as we do even though it needs some work.