Suggestions -how to tapper preds from 10mg

[delorisdoe]

wow, when i read all of this i realise how crazy i was to go about my taper the way I did...I had just had it i guess. 2.5 years of cytoxan and prednisone.

[elephant]

I am going very slow on the prednisone taper. My Rhuemy wants me to continue to wean off it. I am on 4 mg right now. I will go to 3 1/2 mg in a couple of weeks. I am tapering 1/2 mg every 4-6 weeks depending how I feel. It is harder to wean during the spring because of allergy season and if you have sinus involvement it can be confusing. Is it the WG or the pollen?? If your sinuses are acting up you might just want to stay on prednisone a little longer. Of course ask your Doctor or ENT.

[Terri]

I haven't done well trying to go from 10 to 7.5 and now that I am on this 12 day pk which is 60 for 4 days, then you drop to 40 for 4 days and then 20 for 4 days .......I don't know how this will be????

[Sangye]

Terri, that should be fine. You're not on the higher doses long enough for your body to get used to them.

Elephant, I am SO happy that you're down to 4 mg!! Woot!

[elephant]

Thanks Sangye, lets hope that I can continue a little further. Cartwheels at 3 mg!

[Sangye]

Okay, but I think I'm gonna let you do the cartwheels. I'll just watch and clap.

[jola57]

Tell me how it goes Elephant, everytime I try to go lower than 4 my fingers stifen with pain and the coughing starts. Go Elephant Go

[Sangye]

Jolanta, how do you taper once you get below 4mg?

It just might not be possible for you to get below it. At my last visit I asked Dr Seo when I could try tapering from 2.5mg and he said "I think you should just surrender gracefully." LOL

[delorisdoe]

what could have happend to me for stopping i mean tapering prednisone the way I did?

[freakyschizogirl]

It just might not be possible for you to get below it. At my last visit I asked Dr Seo when I could try tapering from 2.5mg and he said "I think you should just surrender gracefully." LOL

Nice to have a doc with a sense of humour!

I'm not liking the taper from 7.5 to 5mg. Lost all the endurance i ever had - feel fat and frumpy and cant walk half as far as i used to cos i just dont have the energy
I've even given up Zumba which i really enjoyed. I didnt realised how much the pred did for me.

Really want my brain back now, i used to be able to spell and type like anyone else. Took me 3 full hours yesterday to remember the name of an old colleague! Really not like me, please tell me it will level out and i'll feel better soon