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Thread: Remicade

  1. 03-30-2011, 05:13 AM #1
    elsawind
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    Default Remicade

    Hi, so glad I found this site!!
    my husband has and aggresive form of WG, which is refractory to standard and intensified therapy.
    Started Infliximab (Remicade) on Feb 24th and next week will have the third infusion.
    I would like to know if anybody used this option and the results.
    Thanks, and the best to everybody.
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  2. 03-30-2011, 06:28 AM #2
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    Palmyra
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    Hi Elsawind,
    My daughter used Remicade for 3+ years, to treat Crohn's disease. It controlled her 'refractory' Crohn's very well with minimal side effects. It was a common experience within the Crohn's community for one to develope antibodies to the medication after awhile, making it no longer effective. Long story short, Humira (another TNF~alpha inhibitor) was utilized next, she then developed Weg. She is currently maintained with Rituximab.

    Good luck to him, and I hope he gets a favorable result.
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  3. 03-30-2011, 06:34 AM #3
    elsawind
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    That is encouraging. I hope he gets some sort of remission because this is a nightmare!
    He tried Rituximab in May 09 and another set of infusions in Nov. 09 with Methotraxate, but it did not work.
    Thanks a lot for your reply!
    good luck to your daughter!
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  4. 03-30-2011, 10:41 AM #4
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    drz
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    Quote Originally Posted by elsawind View Post
    That is encouraging. I hope he gets some sort of remission because this is a nightmare!
    He tried Rituximab in May 09 and another set of infusions in Nov. 09 with Methotraxate, but it did not work.
    Thanks a lot for your reply!
    good luck to your daughter!
    Hope it goes well. Keep us posted.
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  5. 03-30-2011, 01:07 PM #5
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    DuaneHart
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    I have been on Remicade since August '10 and have had very good luck with it. Wegs is in remission and Crohn's and Ulcerative Colitis are getting there. I have Remicade every 8 weeks, methotrexate injection weekly and prednisone daily. Hope it works out well for your husband!
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  6. 03-30-2011, 04:38 PM #6
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    pberggren1
    pberggren1 is offline Phil Berggren, dx 2003
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    Duane, did you try ctx or rtx or something else like Aza or mtx and they did not work and that is why you are on Remicade?
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  7. 03-31-2011, 02:03 AM #7
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    Sangye
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    Nice to hear from you, Duane. How's everything?
    My blog http://sweetnotalways.blogspot.com/

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  8. 03-31-2011, 08:40 AM #8
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    DuaneHart
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    They tried Imuran at first but I could not tolerate it so they started Remicade and things turned around. I'm down to 3mg pred, going down 1 mg every 4 weeks plus the mtx weekly. When I get off the pred then they will think about getting off the mtx.
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  9. 03-31-2011, 08:50 AM #9
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    Sangye
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    That's great!
    My blog http://sweetnotalways.blogspot.com/

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  10. 03-31-2011, 09:02 AM #10
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    pberggren1
    pberggren1 is offline Phil Berggren, dx 2003
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    Duane, you must have had mild involvlement for them to start you off on mtx.
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