Originally Posted by
LilyPony
This site has been such a blessing and you're all full of such great info and insight. I really appreciate it! And, yes, I'm hoping to be in at JH within a month.
Still on the 30 mg pred and have basically stabilized where I am. Body aches, sinuses ache, constantly need to wipe my nose that's not a full-fledged bleed but weeping pinkish-red fluid, and gobs of goo with the neti pot each day.
Yesterday, one hand and 2 fingers "fell asleep". I'd been working on the computer and figured I had my hand set funny while working. Only it didn't get better. Just kept the electric tingle of a fallen asleep body part. An hour later when I went to bed, the tingling had stopped but the palm side of outer two fingers and palm itself were nearly numb. Figured it would resolve by morning but the same, plus the outer two fingers on the other hand are almost as numb. Mid-morning, the inner of my arm from armpit to elbow begins tingling and is becoming numb. Little while ago I have a warming sensation starting on the other arm same spot and random single pinprick feelings in my feet.
Call into the rheum who said to go through GP to get into a neurologist so am waiting for that referral to come in. No telling when that will be.
Anyone experience ANYTHING remotely like this? I can't help but feel this is a vasculitis type thing. Google is full of horrible things it could be, trying to listen to the voices of reason not the little irrational pred monster on my shoulder.
thanks in advance!
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