Worst things about having Wegener's granulomatosis

[Hammy8241]

103. Snoring so loudly, you have to move into separate bedrooms to allow your partner to get some sleep.

LisaMarie - Two minutes out of the day (including having Ciggie after) - try an extra pred - Man talking!

[Chris G]

haha....funny hammy

104. Constantly thinking about stretching my neck when talking to people, to minimize this aweful double chin!
105. Pred-sweating

[NicShaf]

106. Trying to decipher between Wegs, medication side effects or just "normal" pains/discomfort, and emailing your doctor all the time trying to figure them all out...this may be for the newbies only...

[freakyschizogirl]

lol LisaMarie...i never thought but i can now use that as an excuse! "Sorry darling you should've known me when i was on 60mg of Pred..."

[Chris G]

Why do we snore so much? My husband says I snore like a bear now, but I don't know why.

[pberggren1]

107. It seems like the only outings I get are to the doc, hospital, lab, radiology, and pharmacy.

[drz]

107. It seems like the only outings I get are to the doc, hospital, lab, radiology, and pharmacy.

Ain't that the truth unfortunately. I had this one down earlier as knowing your big outing for the day will be a trip to the lab or pharmacy, but its the same concept.

[drz]

Lets try sort out the top ten worst things and see what comes out. Please list the ones that really bother you the most or just seem the worst whether this is how you feel today, or in general most of the time, or the ones you rank a 10 on the horrible scale of worst things you can imagine and see what develops here. If your worst ones aren't already here, please add them. As you can tell this is purely personal and subjective. Feel free to argue the case for your nominations of the baddest things about Wegener's disease and see what bubbles up.

[ArlaMo]

Kind of lumping them together, but pred side effects (weight gain, mood swings, acne, etc.) have got to be in my top ten, if not #1. I'll have to go back thru to come up with the rest of my 10.

[drz]

Kind of lumping them together, but pred side effects (weight gain, mood swings, acne, etc.) have got to be in my top ten, if not #1. I'll have to go back thru to come up with the rest of my 10.

You don't need to list ten things, just as many as you feel the strongest about, but it will help make it easier if your nomination list is no more than ten.

I need to give it some more thought but I think the uncertainty of the disease and the anxiety it generates is one of my biggest bugaboos.