10 months straight of ctx just sounds scary.
10 months straight of ctx just sounds scary.
Marta, be sure to let us know how it goes. I also just got the go ahead from Dr. Langford to start RTX last week and am waiting on insurance approval. I did cytoxan in 1992, but thankfully am going to skip that this time and go straight to RTX.
ArlaMo, did you get the infusion yet? How did it go?
Best of luck to both of you!
Still waiting on insurance approval...sigh.ArlaMo, did you get the infusion yet? How did it go?
Wishing Marta the very best today!!!
Could you not go to Cellcept???
Richard, Cellcept isn't nearly as strong as rtx. It isn't strong enough to induce remission unless someone has very mild disease.
Sangye I did not know that until you mentioned it in your last thread. BTW..because of your last experience with Cellcept and Dr Seo..I realize that I needed to move quickly and get bloodwork done and schedule the appt. I remember you mentioned that you wanted too but your Doc waited too long.
Anyway thank goodness for this forum and THANK YOU SANGYE![]()
Oh, that makes me SO happy. I've learned so much from others' experiences on here, too. It's saved me a lot of suffering.
Thanks yous guys.
The infusion went off without a hitch. They even managed to get a vein in only two tries. I have very difficult veins (even our local anesthesiologist was trying to get in for more than a half an hour last time I was in the hospital and finally gave up and went into the main vein in the crook of the elbow where they take blood from - cheater). I watched people come and go all day (there were only three or four of us that spent the whole day there) and it was uneventful. Didn't feel anything out of the ordinary during the infusion (except for an itchy throat and tongue for about 2 minutes and just as I was about to tell them it went away). Would have had no problem driving myself home after as well, but I was sportin' my personal assistant (Brian the awesome) and got driven. Since then - two days ago now - I've felt a little extra tired at the end of the day, but nothing significant. My face colour seems to go all funky as the day progresses, but that's something that I'm used to now. I wake up all pink and human looking though - which is kinda new.
I am looking forward to phase 2 of the project and then on with the rebuilding of life.
P.S. I second Richard's motion on "THANK GOODNESS FOR THIS FORUM"
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