Angela, not to worry. I write train of thought style, without ever really going back and checking out if what I wrote makes sense... which is why I often cringe when I read some of my posts. Thoughts like - " I hope I didn't offend someone " , "Oh, that can be interpreted about five different ways", "Man do I sound like a goober" - often go through my head as I re-read posts that I have already allowed to 'go live'. I just wanted to let you know that we all feel that feeling of 'Why now, Wegener's?' and let you know you're not alone in feeling that.
After reading some of the other posts on here, I should mention that when I say I'm back to normal, I mean Weggie normal, not pre diagnosis normal (as far as energy goes). Pre diagnosis I could do a lot of things, now I go to the ski hill and do a few runs with my little girl - here we are skiing a couple of days ago (I'm the one in the green jacket constantly hoovering behind her)
YouTube - TheJasperlife's Channel but can't do a full day of skiing the bumps and bowls like I use to. Oh yeah, my hair is quite the joke too. I call it 'my three hairs', but oh well, at least I get to hang out with my beautiful family, so all is good.
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