What is crusting?

[JanW]

Whoops! My bias is showing, assuming that the MOM would be on here posting.

Apologies, guys!

[Daggar]

No apology necessary Jan -- it may be MORE entertaining! I just happen to have the luxury (or misfortune--depending on how you look at it... just kidding Ginger!!) of working from home or the office. The wife can't so we decided early that one of us would be the main caregiver to eliminate any confusion with meds, diet and communication with all these doctors that she has. Holly is now getting to the point where she is handling more and more so now I have to learn to "back off" as they say.

[chrisTIn@]

Ginger, do you mean your docs have never told you about that? If so, I'm appalled. It's a "classic" sign of Wegs, that any doctor--even those who are totally unskilled in treating Wegs-- would recognize.

Still my GP didn't recognize it.
When I finally had the diagnose (from an internist, I was very lucky that she had worked with a Wegs specialist while she was in training, as a student) I came back to my GP and told him.
He had to look on his computer to see what Wegener's Granulomatosis is all about. He didn't have much knowledge about it.
I could have gone undiagnosed forever...

[Bren]

Jack,
that is a real definition of a brain tugger.. but Jack u explained very well !!

[Sangye]

chrisTin@, that's different. Nasal crusting doesn't necessarily indicate Wegs. Tons of things can cause it. Unless there's obvious lung or kidney trouble, no doc would think of Wegs. In diagnosis classes the only thing you learn about Wegs is "rare, autoimmune, sinus-kidney-lungs." This tiny bit of info is among literally hundreds of diseases and conditions that you learn in great detail. So unless a patient presents with all three, there is very little to inspire a doctor to think Wegs.

The reason I was shocked by Holly's comment was that she was already diagnosed with Wegs and it sounded like no one had told her the crusting was part of it.

[Ginger]

Still my GP didn't recognize it.
When I finally had the diagnose (from an internist, I was very lucky that she had worked with a Wegs specialist while she was in training, as a student) I came back to my GP and told him.
He had to look on his computer to see what Wegener's Granulomatosis is all about. He didn't have much knowledge about it.
I could have gone undiagnosed forever...

OMGEE same story for me..... i had gone to my GP for awhile with my symptoms and had an apointment for the next week. Then, i went to the ER......It's scary to think if i hadn't gone to the ER that day, and just dealt with it, i would have gone undiagnosed! EEEK

[Ginger]

LOL Soorry for the confusion haha..... I did know that crusting was part of Wegs, it's just that it never registered to ME that I had it until i had a clear mind and noo crusting.... wooooowww i probably sound really dumb.. but just had to clear that up haha

[malin]

I know this is an old thread but I thought it better to revive it than start a new one

I am wondering, does crusting in nose mean saddle nose eventually? Or is saddle nose a completely different part?

[pberggren1]

They can be totally unrelated Malin. I had crusting and bleeding for years with major mucus production before my saddle nose came along. And I have also seen Weggies with years of crusting with no saddle nose. Wegs is totally unpredictable.

[mishb]

They can be totally unrelated Malin. I had crusting and bleeding for years with major mucus production before my saddle nose came along. And I have also seen Weggies with years of crusting with no saddle nose. Wegs is totally unpredictable.

That's me too Malin.......... but without the saddle nose.