Hello everyone!
I have been reading your posts for a couple of weeks and feel very fortunate to have found this site. I was just diagnosed January 14th after 8 months of various problems. I started out with sinus problems and severe joint pain soon after having my first child. They first thought I had rhumetoid arthritis. I wasn't connecting the two different problems. In November I developed a cough and started coughing up blood and suddenly I had horrible blood test results. I was severly anemic and my kidneys were in trouble. I was sent first to a Pulmanologist who listened to all my symptoms did a CT and blood work and suspected Wegners.
My rhumetologist then confirmed the diagnosis of Wegners and I am now on 60 mg of Pred. I was given Ritunxin last Monday. I am suppose to get round 2 of Rituxin on Valentine's day. Of course now I have come down with a cold and infection so I don't know yet if I will be able to get the treatment. I started taking Avalox yesterday. I have also started developing a rash on my legs that looks and feels like a sunburn. Has anyone ever had this as a response to medication or could it be the Wegner's? I am going back to the doctor tomorrow so she can look at it. I feel completely overwhelmed at the thought of batteling this disease tyring to be a good parent to a one year old and working in the school system where everyone around me seems sick. I am terrified of anyone being sick because I seem to catch everything since starting the Pred. A stomach virus put me in the ER just 3 weeks ago. This is such a scarey battle and it is comforting to know there is a group like this.
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