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Thread: Stenosis Dilation Dilemma

  1. #21
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    Bob, I also think it's important to remember that with stenosis where you are treated first really matters. People who go to major center with ENTs/thoracic surgeons who deal with this all of the time have pretty good success rates. Particularly when you are reading on here you are seeing a wide variety of patients, all over the world. Some people are having surgery with lasers (rarely done in the US except in cases where the scarring is so thick that you can't cut it with microscissors), some are just having repeat balloon dilations and since I dilation is just stretching without cutting, yes, of course, it will have to be done over and over. My doc is constantly revising his surgeries to make it safer and better, and since he's somewhat of a worldbeater in this kind of thing (this and fixing saddle noses is his deal, which is good, because the two often run together) I trust his judgment. Since you go to CC, you should trust them and if they tell you one surgery, go ahead and get it done if the stenosis is impacting your quality of life.

  2. #22
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    I saw my ent today and he said it's time. So it should be happening in the next month or so.
    ~ Bob

  3. #23
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    Good Luck Bob! Its not as scarey as it sounds...and you know, you gotta do what you gotta do. We will be with you all the way.
    lisa

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    Good luck and we will be with you!!

  5. #25
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    Good luck BOB glad things are getting sorted for you DEEx

  6. #26
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    Sounds like the perfect time to do it since you're feeling so well otherwise. I bet once you can breathe well you'll be feeling fantastic.

  7. #27
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    Good luck Bob. You will be fine. I don't know if your docs told you that you will notice the different right away, but I absolutely did right in the recovery room.

  8. #28
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    Still no call back to schedule the surgery. I'll have to contact them next week and get it set up if I don't hear from them first. Weirdly I'm nerviously optimistic about the whole thing
    ~ Bob

  9. #29
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    So now some details now that I'm not posting from my phone. The stenosis looked worse than last summer for sure. I also seem to have a weird case of it. My stenosis is all front to back, rather than around the whole diameter of the trachea. I'd have been completely closed if it was coming in from all directions. Basically the back of my trachea is actually normal, but just a little air passage there as the front has scarred back about 3/4 of the airway. So I guess I'm lucky it went that way or I may have had issues much sooner. On the flip side I wonder if the treatment isn't going as well as I thought as my specialist thought it might stop or possibly reverse progress, but alas it's not the case.

    Also, evidently, the way I am blocked is actually harder to correct as the incisions are unidirectional and thus will be harder to get them to take.
    ~ Bob

  10. #30
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    That is so bizarre, Bob. What will your body think of next?

    JanW's doc (Dr Lebovic) insists that stenosis progression has nothing to do with treatment-- ie, its progression doesn't indicate active Wegs. I hope I've got that right! Jan?

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