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Thread: Stenosis Dilation Dilemma

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    That's probably a good idea

    Honestly, when I lost weight I never had been a runner even when I was young and in shape, but after being in pretty poor shape for all those years, I really wanted the opportunity to do some things I hadn't been able to.

    PS...you wouldn't happen to have a link to the type of pillow you are talking about would ya? I want to make sure I'm looking at the right thing.
    ~ Bob

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    Cool, I'll look into that
    ~ Bob

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    Hi Bob, I will second Sangye's advice to look into the pillow. While not the brand referenced in her link, I have used one since my open lung biopsy and it definately makes trying to sleep with lung, chest and rib pain noticeably easier. Also allows me to sleep on my back which is impossible otherwise - - and it does lessen the episodes of nighttime GERD pain. Good luck, Ron

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    I have tracheal stenosis and I think it's really frustrating not being able to to all the things I want to do because the shortness of breath. In my opinion it's better going through a few of these surgeries than not doing it. For me the surgeries are really ok, as I'm in quite good shape already a couple of hours after I wake up, my throat only hurts a little bit. Even though the stenosis may come back again after just a few months, it's really worth it. The positive aspects really outweighs the negative ones, at least that's what I think. I'm guessing that it's not that easy for you though, as you probably have to pay a lot of money for each surgery..

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    Thankfully that's not too big a concern for me right now. I'm more concerned with getting a net affect of worse stenosis than I have already.
    ~ Bob

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    Bob,
    Settling for a life of dilation could be worse, it will give you relief instantly. I had it dilated 6 times in one year with about 2 weeks to 4 months between, then I went 8 months between, can't figure out why some last and others don't. I find for me, my breathing is effected by food sometimes sugar makes me wheeze, so I try to cut all of that out of my diet.
    do you find anything makes it worse at times or am I the only unlucky one to have Sugar be my trigger

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    Quote Originally Posted by Donna88 View Post
    Bob,
    Settling for a life of dilation could be worse, it will give you relief instantly. I had it dilated 6 times in one year with about 2 weeks to 4 months between, then I went 8 months between, can't figure out why some last and others don't. I find for me, my breathing is effected by food sometimes sugar makes me wheeze, so I try to cut all of that out of my diet.
    do you find anything makes it worse at times or am I the only unlucky one to have Sugar be my trigger
    Sugar is a problem for me, too. If I overdo it, it can increase any of my symptoms, whether it be wheezing, sinus congestion, ear pain, or whatever. Luckily haven't had the stenosis problem as yet, and wheezing is more from sinus drainage getting into my bronchial tubes, plus I have a history of asthma.

    Anne

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    Since going on a cpap machine my wheezing is greatly reduced. I do get wheezing after food though, I'm going to have to start recording what I eat to see if there is a corolation.
    ~ Bob

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