Originally Posted by
JanW
The idea that WG affects mainly whites has been debunked, although of course you will see many outdated websites that say that. Researchers at the symposium said that it affects women and men equally (though in the past in had been thought of as a man's disease) and all of the races randomly.
I would suspect that the reason that many minorities in this country don't get diagnosed is lack of access to great healthcare. As for overseas, yes, your doctors have a lot more to look for vs. WG, and you may die before you ever get diagnosed.
I'm black, and a particular bugaboo of mine is when people say that blacks really don't get the diagnosis in any numbers because they aren't represented in VF literature etc. We are rare to be sure, just like all weggies are rare, but the barriers to access to healthcare (just getting to a vasculitis center from far away is a middle class thing, not something a poor person can easily do) make a difference in our ability to 'show up' and advocate for ourselves.
It's no surprise that the people I met at the Symposium were small business owners or professionals with the kind of flexible time and disposable income to attend.
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