Sangye, glad you got the infusion! You will get better!
Sangye, glad you got the infusion! You will get better!
Thanks everyone. The good thing is that I know rtx works well for me so it's just a matter of toughing it out for the next 4-6 weeks.
pwc51, Dr Seo told me people either react to rtx infusions as if they were given a saline IV or they get very weak like me. There seems to be no way to predict which reaction someone will have. I'd sure love to have the "non-reaction" thing, but at least I know this is finite. Rtx doesn't do the same collateral damage as ctx though, since it isn't chemo.
Good luck Sangye! Stay positive and hopefully you will not feel awful this time around. For others, I had no problems with the Rituxan! When I went in for my infusions last year, the nurse said she hasn't seen anyone yet have any problems/reactions to the Rituxan.
Thinking of you. Hope you are feeling better soon.
Thanks Brooke. I'm guessing the nurse meant allergic reactions to rtx? They wouldn't necessarily know how it makes someone weak in the days and weeks afterwards.
Allergic reaction is always a possibility, especially the more often rtx is used. That's why Dr Seo orders 100mg solumedrol for me--higher than what some people get-- along with benadryl. I don't have any other drug option so I can't become allergic to rtx. He does have one patient who developed an allergy to it though, and has no other treatment options. That was last year. I haven't asked him how the patient is doing, but his facial expression was very somber when he told me. I suspect it wasn't good. Those of us who have any treatment options left-- even just one--are incredibly fortunate.
Going to the doctor today to discuss switching to this - wants to pull me off the cytoxan. I am going for it but want to wait till I get back from my cruise March 1st. Little worried about what kind of reaction I am going to have. he wants to do one treatment then another 2 weeks later. We are waiting for insurance approval.
Been on cytoxan to long and I have had issues with my eyes. Have been on predisone drops for a month.
Is there any way you can get to a Wegs specialist or get one to consult on your case?
How are you feeling today, Sangye? Has the truck hit yet, or did it maybe pass you by this time?
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