I obviously can't speak for him, but in the context of my two meetings with him this came up. At least for me in particular, he indicated that searching the web could lead me to draw erroneous conclusions. The best thing is to get decisive treatment.
He also indicated that I should try to focus on living my new life as the new me rather than obsessing about the nuances of the illness.
I can't say that this message was for everyone, but I've taken it to heart.
Now keep in mind that except for some lung scarring and a slightly collapsed left lung, I have gotten off very easily from Wegener's. My disease is well under control and most of my other problems were from two additional health issues that are now being addressed.
My doctors and I were somewhat blinded to the possibility that my symptoms indicated more than just Wegener's at work. It can become the bogey man.
Now please remember that the above is not straight from Dr. Speck's mouth. This is my take-away from my private meetings with him regarding my own particular case.
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