Sad!!

[LisaMarie]

From the obtitary it leads that he was recently diagnosised or got really sick this last year...it is very sad ...but it goes to show how fragile life is and it could be any of us at anytime...harsh reality but true..guess i better get my tush in gear and get my will done ....I send my deepest sympathy to his family

[Psyborg]

Very sad...hits close to home on some points. He was a couple years younger than me...sometimes you almost forget how serious this can be if not well controlled. I wonder if he was getting the level of care he needed at Rapid City.? it's a pretty small city.

[Brooke]

I was wondering the same thing Psyborg, it is a small city.

[Sangye]

Stupid Wegener's.

[drz]

I was wondering the same thing Psyborg, it is a small city.

It is second largest city in SD. It is medical center for that area and for 100 miles in any direction. Once you leave the Mississippi there are no large cities in the northern states till you reach the Pacific Ocean so any "large city" becomes a medical treatment center. That doesn't mean they have specialists in Vasculitis but the care might be better than what you would get in a city of comparable size that was near a big metro area. Most of these medical centers are also used to contacting specialists around the country for assistance since they do not have all the local specialists they may need. Many locales have well developed video and tele-medicine centers to get such assistance. I don't know if quality of care was a factor in this person death or not but I would not assume it was poor just because of the location. When I was diagnosed last year my family was told 90 % of people survive initial treatment but that means some don't, usually from complications of infection (pneumonia) but sometimes from kidney failure and lung exhaustion. I don't personally know any one yet who has died from Wegener's but it does happen and is especially sad for some one so young.

[Sangye]

We have lost several members in this group--some young, some elderly.

[jola57]

It brings home two points: How devastating and lethal this disease can be, and How lucky we are to be alive

[jtausan]

Hello all,

I now carry Hud's Obit in my purse to remind me how devastating this disease can be. Rapid City is a small town and no we do not have a Vasculitis center. Most of the Doctors here will send you to Mayo in Rochester for treatment. I unfourtunately did not know Hud so I don't know what kind of treatment he was getting. I am sad he lost his life so young and to Wegeners.

Brooke-I am going back to Mayo soon so that I can be seen at the new Vasculitis center. I recently got a referral from Indian Health to help me with the costs of treatment. I can't wait to go again, Mayo is so amazing. I have been feeling pretty well tho, I had a Kidney infection that has cleared up.
I hope you are doing well too.
Jodi

[drz]

It brings home two points: How devastating and lethal this disease can be, and How lucky we are to be alive

AMEN!!
We are also lucky to be well enough to read these posts and to post our own messages cause a few months ago I was too sick to do so.

[drz]

Hello all,

I now carry Hud's Obit in my purse to remind me how devastating this disease can be. Rapid City is a small town and no we do not have a Vasculitis center. Most of the Doctors here will send you to Mayo in Rochester for treatment. I unfourtunately did not know Hud so I don't know what kind of treatment he was getting. I am sad he lost his life so young and to Wegeners.

Brooke-I am going back to Mayo soon so that I can be seen at the new Vasculitis center. I recently got a referral from Indian Health to help me with the costs of treatment. I can't wait to go again, Mayo is so amazing. I have been feeling pretty well tho, I had a Kidney infection that has cleared up.
I hope you are doing well too.
Jodi

Congratulation on the referral and getting rid of kidney infection. That must be a great relief to you.