At the new Mayo Vaculitis Center

[Minneapolismark]

First day went well. Dr. Ulrich Specks is a cool dude. Having tests all week. No orifice will be neglected.

Kahler Grand is right across the street. Nice restaurants although I have to fast until Thursday night. Specks set up a whole battery of test this week on the spot. Very cool.

The Dove Bookstore has hand painted military models (I just happen to think they are cool.)

Shuttle bus runs from MSP airport all the way to Rochester.

Specks really seems to be on top of things. Cool accent too.

[elephant]

Wonderful Mark, you are going to get great care. Cheers to your health!

[pberggren1]

That's awesome Mark. To be at a center like that is where we are going to get the best overall care. All the Wegs docs work as a team and mainly just see Wegs patients, from Rhuemys, Nephs, ENTs, etc.

[LisaMarie]

Mark,
Happy to hear all is going well....Just got my appointment card and am hoping they put me in the right clinic...my card says it is in the Gonda Building ..but my concern is that it say the appointment is for a focused lung evaluation only".....Is that what yours said?...When I called i asked for the new Vasculitis Center Dr Specks was heading up...so if it is wrong please tell me so I can call to schedule the right clinic....my WG is maining sinus and trach, right hearing lost and left carotid?......I am hoping to have all the test he needs done prior to going up......or atleast most of them.....please keep up posted....i will be driving atleast 2 hours each day to get there since we are staying in minneapolis and opting on the 5 day pass for parking ......keep us posted and good luck

[Minneapolismark]

Your info is right. The vasculitis center is in the Gonda building.

I was scheduled for a one hour pneumatology consult which turned into five days of tests, labs and consults. Everything from colonoscopy to neurology to opthamology and so on. Then Friday late afternoon a wrap up with Specks again.

The cool thing is that they operate as a team, and even the neurologist is a Weggies specialist. Very cool.

Be sure to get there early to fill out paperwork.

There are loads of shops and restaurants to kill time in the underground walkways between buildings.

[Psyborg]

Sounds like things are going well for you. Glad you were able to get in to a Vasculitis center and start getting the specialized treatment

[Brooke]

Boy I feel silly saying this but I have been to Mayo Clinic many times and I didn't realize that the vasculitis center was in the gonda building or even that there was one. I'm real observant huh?

[LisaMarie]

it s a new clinic.....so u r fine...thanks for the update Mark plan on sending all my records 2weeks in advance plus hand carry them in....hope i don't have to stay a week but will do what o gotta do...fasting would be hard on prednisone ...keep us posted thanks

[Sangye]

The cool thing is that they operate as a team, and even the neurologist is a Weggies specialist. Very cool.

THAT'S why it's important for Weggies to go to Vasculitis centers whenever possible.

There are loads of shops and restaurants to kill time in the underground walkways between buildings.

Mayo has that down better than JHU. The JHU campus that has the vasculitis center is in a bad neighborhood of Baltimore.

Mark, why do you have to fast for several days? What are they testing?

[elephant]

I am wondering if they are doing a colonoscopy.