Spleen problems anyone?

[elephant]

Thanks for letting us know LisaMarie. Hope all gets sorted soon.

[Natalie]

Hope your spleen is all ok Lisa Marie I have never heard of spleen involvment ?.
just want to ask a question of what sangye said about the radiation and contrast dies. I have MRIs on my Orbits with dyes but I think this IS a necessary test with having eye involvement ? would you agree ? I have One every year unless I'm having trouble in that area .

[Sangye]

Natalie, that's a question to ask your eye specialist. It could be necessary in order to monitor your eye involvement, or it could be overkill. I would have no way of knowing which it is.

[Natalie]

thanks Sangye .. I will be asking
you always find something in these treads .. that makes you go ooh ?????

[Sangye]

I sure do! I take lots of mental notes

[drz]

I sure do! I take lots of mental notes

I think we all find things we want to ask our treatment team about. It is great to share info to help us keep up with what is good recommended treatment and treatment options. Thanks to all who post.

[elephant]

When my eyes were bothering me they did a CT scan of my orbitals to see if Weg was involved.

[dunkie2202]

When my eyes were bothering me they did a CT scan of my orbitals to see if Weg was involved.

Could you tell me exactly how your eye's have been affected please? I don't know if mine is related to Weg's or is just an infection.
My eyelids are red and the bottom one is sore plus my eye is mucky. Could it be just conjunctivitis?

[elephant]

It could be both, WG attacking the eyes/ and an infection.
How my eye were affected- they felt like grit was in them, the felt sore, the eye lids were swollen sometimes and I would always get eye infections, red eye ( doc thought allergies). I was constantly at the eye docs and saw so many different ones to get second , third, forth, fifth.....ect... opinions.

[dunkie2202]

Ok thanks for that elephant, I will get it checked out tomorrow when I see my Doctors.