User Tag List

Likes Likes:  0
Page 1 of 2 12 LastLast
Results 1 to 10 of 19

Thread: Hey new from MD, bad speller too.

  1. #1
    Join Date
    Dec 2010
    Location
    Maryland, USA
    Posts
    19
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Hey new from MD, bad speller too.

    So, I have had it with doctors, not giving up and need to reach out and remain pro-active. So far everyone I have interacted with has been amazing and I look forward to more positive energy. My name is Leah (ofcourse) and was diagnosed w/ WG in June of this year. I am an artist, mom, friend and a spit fire. I am Also always here for anyone who should need ANYTHING. Nice to meet you guys, new doc I am meeting today (yes, I NOW almost have interviews with physicians) little nervous, but, we shall see... Leah p.s. thanks again

  2. #2
    Join Date
    Jul 2010
    Location
    East Tennessee
    Posts
    169
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Leah... glad you made it here

    ~Stacey~

  3. #3
    Join Date
    Jul 2010
    Location
    Blacklick, Oh
    Posts
    1,399
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Welcome to the forum
    ~ Bob

  4. #4
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Leah, I hope you got my email answer. Glad to have you in the group!

  5. #5
    Join Date
    Feb 2010
    Posts
    1,319
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    welcome to our group DEEx

  6. #6
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Welcome to the group, Leah. Please write more about your case when you can!

  7. #7
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Welcome and good luck Leah.

  8. #8
    Join Date
    Dec 2010
    Location
    Maryland, USA
    Posts
    19
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks again everyone......Crummy day , although I feel pretty good today, to be more specific... I am a pulmonary pt. Legions in both lungs and staff in my blood. Removed port I had and put me in the hospital for 3 months (in SC) I have since moved to MD and no no-one!! I thought I would get better care here, but have hads some trouble, as stated above, (ty Sanje) I took ur advise. I have flair ups and am currently on .............*DRUM ROLL PLEASE* cYTOXIN AND PRESINSONE. Responding meh, 1/2 n 1/2. tried some imuran. one month and dissaster. I am now traveling back and forth between SC and MD 10 HOURS!!!!!!!!! To see docs. I never quit and hope and am somewhat reassured from what u all have shown me so far I am in the right place. Doc today put back on cytoxin and pres until I see new docs in a few weeks. I am getting dizzy, figuratively. All my love and blessings to you all. Leah
    Last edited by leahrubyred; 12-29-2010 at 04:23 AM.

  9. #9
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    You will get much better care here in Maryland if you go to JHU. You'll have to do your best with a PCP unless you want to see one at JHU, also.

    Which doc did you see today? Also, they should not be using a port unless it's an absolute emergency. That's because Wegs is a vasculitis (inflames blood vessels) and because we are immune-compromised. Ports are a major source of infection.

  10. #10
    Join Date
    Dec 2010
    Location
    Maryland, USA
    Posts
    19
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    LOL, Found that (ports) out the hard way. All of that has been removed. I am also having crowns, and implants removed on the 10th going to falsies. Getting rid of ALL possible souces of infection. saw two today actually, internist and another specialist. Took me off imuran and back on c&p regime as I said, until the new ruemo sees me at the end of Jan. I wish the surgeon who put it in thought of that, they just wanted convienence. Things like that are what led me here, and made me start educating myself in all ways possible. Plus, we LOVE the library in my house. =) Do you know a good internest @ JH?

Page 1 of 2 12 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •