Thanks, everyone. I'm so grateful for your kindness. My friends are very compassionate (it helps to hang out with monks and nuns, you know?), and it's also nice to be able to come on here and vent.

Elephant, I got down to 1mg pred last year and was doing fine. I ran into trouble when I dropped below it too quickly--not Wegs activity, but adrenals shutting down. Because of adrenal issues, I might not be able to get off pred completely but probably only need 0.5 to 1mg. For the 2.5 yrs I was off pred I was in terrible shape. The disease wasn't under control, though so it's hard to say. Right now I can't get below 3mg out of concern that it'll wake up the Wegs even more.

I'm a good example of how you can have the disease under control but still be in terrible shape due to collateral damage and other complications. Really tired of being such a good example, though.