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Thread: Interesting

  1. #1
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    Default Interesting

    Hey y'all,

    I've been off for a while trying to get myself together - it's not coming back to me as quickly as I like - in fact it's tiny little microsteps - the kind you need a microscope to see the progress with. But I think it's moving in the right direction.

    Here's a little something that my sister just found and sent my way. Interesting indeed. I remember my little girl having the 'slapped cheek' thing a while back. I might ask my doc to do a blood test just out of curiosity.

    Human Parvovirus B19 Infection: Autoimmune Disease Trigger

    Also something crazy I just heard about today. ANOTHER co-worker just got taken to the city with 'liver failure'. This is a strong, healthy active father of two who ended up working at my old desk after I got sick (only six months). So now there are FOUR of us who worked within 5-10 feet of each other, with no medical histories, very active lifestyles who are all currently fighting something of unknown origin (mine is the only one diagnosed, but we all seem to have similar symptoms and all of us have organ involvement). How bizzare is that?

    Hope everyone's doing well. I haven't been on my computer for days and days.

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    I remember reading this when I was first diagnosed. I had worked at a daycare and one of the children had come down with fifths disease. While sick children waited for their parents to come I would keep them in my office. Sometimes they would wait up to a few hours until their parents could pick them up. they would touch everything in the office. I was not worried for myself usually just disenfected after they left.

    That was one of the many things I thought of on how I could have become ill with wegeners.

    I have a list of them. Who knows it may be a combination of many.

    I also was exposed to strep throat and possibly had it just before I became very ill. (the doctor was out of test kits but since I had a sore/ulcer in my mouth that looked infected she gave me anti biotic and said it would cover both.) I was diagnosed with wegs less than 1 month later.

    I live by lake michigan and grew up drinking water from it that was later found to be polluted with chemicals from a plant in our town.

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    Marta that is weird! You all should go to the same specialist and do a case study.
    Julia, I spent most of my life drinking lake michigan. I lived about three or four blocks from Lake Michigan.

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    Although I don't yet know what type of vasculitis I have, I will add that I live in northwest Indiana and also have Lake Michigan water. It does make you wonder!

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    Hi Marta, sorry to hear you are struggling at this moment, get some rest and hopefully stability back into your life. With reference to your comments about immune triggers, by coincidence I was at a vasculitis meeting on Sunday and a study by David Scott, who is head of research at Norwich Hospital was discussed. In simplistic terms, it was found that there was a high occurance of Wegeners in rural areas and also involving people who dealt with livestock. The discussion then inevitably moved onto environmental issues, spraying of crops, animal jabs, organic phosphates, etc and their potential impact on us. From my own point of view, I was a land surveyor for 35 years and so fitted perfectly into the demographic. Not long before I started 'becoming ill', I worked in a converted barn which had been turned into offices. Needless to say it was full of exposed beams which added to the 'charm'. One day I came into work and found the desks covered in a fine dust and was told that the beams had been treated with ??????. This dust persisted for several weeks. Looking back, I am convinced that this was the trigger to my condition. I recall Marta that in your survey you asked where we live, and it would be interesting to see if your study agrees with the research from David Scott.

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    Hi Geoff, I was very interested in your post as I took part in Professor Scott's study and very thorough it was too !. The Research Doctor came to the house and filled in the questionnaire which covered just about everything you can think of, from environments lived in, to childhood illnesses, pets, use of insecticides, family health traits, etc . I do have a copy of the final report (just can't lay my hands on it at the moment ~ the Wegener method of filing !!).

    I do recall the findings made rural living a big contender ( most of Norfolk is very rural anyway) but there is a field with woods going up a hill at the back of my house, making a bowl-like effect and when we first moved here, the farmer regularly sprayed the field with weedkiller. !!, Not long after this my problems began.

    I did read about the meeting in the Stuart Strange newsletter and would have loved to attend so am very interested in your comments - thanks.
    Last edited by Fran; 11-18-2010 at 04:40 AM. Reason: spelling

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    Hi Fran, I've got Eileen to thank for giving me the 'heads up' about the meeting. Its a pity you couldnt make it as there would then have been 11 Weggies!!

    Do you go to Addenbrookes or do you see Professor Scott in Norwich?

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    This makes me wonder how many of us have changed our own use of chemicals in the home and garden. (I already used natural cleaners and no toxic stuff before I got sick.) Has it changed any of your habits, fellow Weggies?

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    Hi Geoff - I don't actually see Professor Scott personally (although he was one of the consultants who input into my dx in 1998) I see one of his colleagues I have been told P.Scott doesn't see many patients now as he is more into research and lecturing - but don't quote me on that !!

    It's a shame I couldn't make the meeting - glad you enjoyed it.

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    Sangye, Well all pesticides are banned at our house now (shutting the stable door after the horse has bolted !!) and we are also careful about not using aerosols as they irritate my sinuses. Going to the hairdressers is just awful as the hairspray makes me cough and sneeze - that's why I hardly go and cut my own hair - lol

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