Likes: 0
Registered User
Manalolana, thankfully my eyes are back to normal. The only reminder is this picture of course and the scars from the stitches which are in the crease of my eyelids and can't be seen.
Chris I was asked the same thing when I went to the ophthalmologist.
I my have Wegener's Granulomatosis and that I can't change. What I can change is how I choose to deal with it.
Registered User
Oh my goodness I had no idea that WG could do this. My right eye is affected but with scleritis and occasional swelling. I am so glad that they were able to correct this for you. You must have been
so scared.
Registered Member
That is what brought me to five eye doctors, mostly swollen eye lids and dry eyes that were painful. But my eye lids were not that swollen. Glad your feeling better.
Registered User
My eyes weren't just swollen, the granulomas were hard as rocks and VERY painful.
I my have Wegener's Granulomatosis and that I can't change. What I can change is how I choose to deal with it.
Registered User
Hi HypnoticEyez!
I also had severe swelling of my eyelids (along with alot of pain) due to an acute inflammatory attack on my tear glands. By the way, what treatment did your doctors prescribe after this attack?
Registered User
Beeinformed, I was put on 60 mg of Prednisone, Mesna and IV Cytoxan (1600 mg) the day after I was diagnosed. The joint pain was gone the day after treatment, and it took 10 days for my eyes to look normal again. I am now down to 30 mg of Prednisone and IV Cytoxan every 3 weeks.
Last edited by HypnoticEyez; 10-27-2011 at 11:09 AM.
I my have Wegener's Granulomatosis and that I can't change. What I can change is how I choose to deal with it.
Registered Member
My ophthalmologist told me that scleritis is most common cause of loss of vision from GPA. I thought it might be attacks on optic nerve or retina. I had scleritis a couple weeks before the doctors finally figure out I had WEGS but got it treated quickly and correctly due to vigilance about my eyes from damage by diabetes and other issues and history.Originally Posted by Shannon
Registered User
At Mayo this week!
Registered Member
YEA! Don't know which one you're at, but you're in good hands...they will work you over and more! It'll all be for YOUR good! Good luck! I love it there, insofar as love matters in a hospital!! LOL
Registered User
Hi, Malalokana!
I joined the forum after your earlier posts, so I went through the thread form the top. You have been through a lot! I hope the Mayo guys get it sorted out. We would love a report!
Al
Posting Permissions
Reply With Quote
Bookmarks