Symptoms

[manalolana]

Thanks elephant!

[manalolana]

OMG! That sounds like me Dee. It's so discouraging to be this weak!

I am thankful for friends I have here but my family lives in a different country. Literally oceans apart. Not so fun being sick without family.

For mouth ulcers, I increased folic acid to 5g a day and it seems like it helped.

For better liver function, I take milk thristle at least 1000 mg a day. My ID doctor is originally from mainland China and he thinks that has been helping me with my liver functions.

[manalolana]

Thanks eileenv! I just joined so I am still so overwhelmed that there are others out there and how nice everyone is. Aloha!

[Sangye]

Be careful with milk thistle. It's able to heal liver tissue, which is great. But it also detoxifies the liver. Drugs are treated as toxins by the body, so detoxing means you could be losing the very drugs you need. Don't take anywhere near the suggested dose.

[manalolana]

ah ok. I will make it a point to ask my doc on that as well. Thanks Sangye!

[LisaMarie]

Here is one of my favorite quotes...
"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much." -- Mother Teresa

amen to that quote

[manalolana]

I love that Lisa Marie! MAHALO! My middle name is Rosa Maria

[LisaMarie]

Manalolana,
Welcome to our roller coaster......I have been dx since May and hate this ride....mine is in my sinus and right jaw as well as trach stenosis and right ear with noted hearing loss.....still trying to find the right combination for me ...just spent 14 days in the hospital with some funky fungal infection that almost took me home to the big house in the sky and at 43 yrs old am quite glad he left me here for a bit......My husband is fillopino and has some difficulty realizing how sick i was till i almost died...something about me being stubborn and acting well when i was sick as all get out ...I tend to over do it ...not use to sitting still ...so please when your body says rest ...trust me REST....cause it will come and knock you out in a not very nice way......keep close touch with your WG specialist ....and keep asking questions til you get your answers....I write all my questions out then me and the doc talk and i write his responces down...and wneh he can not give me and answer he is honest enough to say I do not know but will try to find out....i see him every 4-6 weeks....hope you get to feeling better soon...i mediate ...it works for me

[LisaMarie]

have a good night i gotta head to bed

[manalolana]

Wow! Thank you so much Lisa Marie! Roller Coaster Ride is right!

I am sometime in denial that I am sick. And I guess, it's dreaming about how energetic I used to be.

At work, in the exception of those at work that needed to know for liability purposes since I have been needing to work from home more often than not (my boss has been trying to keep my "pride", a very nice man), I am still trying to pretend that I am not sick in front of others. I really need my job since we don't have good medical here in the states. I don't ever had to pay medical until I moved to America. And I never realized how exhausting it was to put a good face on until I got sick. Until this year, I pretended I will be okay in front of my mother not to worry her. Until she came to visit me when I had lost about 10lbs and was weighing about 90 lbs, she didn't know how sick I was.

Things happen for a reason I believe. Had a fiance last year who stated that he couldn't support me emotionally and broke off the engagement which I am thankful for. And the few friends I have, they have been nothing but supportive, taking me to hospitals, waiting when I went in to surgeries, bringing me food or taking me out for a drive. Never had to ask for help and this experience continues to humble me.

I am going to do what you stated above. And see the seed grow