Symptoms

[manalolana]

Talofa! One of my best buddies are from Pago Pago!

[elephant]

Hi manaoloana, just take it slow tapering off prednisone, cause if you get off it too fast it can cause a WG flare if the WG is not really controlled since prednisone can mask symptoms. Are you on Bactrim and prednisone....sorry I forgot.

[Brooke]

Manaoloana - Talofa to you! how cool, that is where my husband is from. Last name is Mageo. I will name some of his family members and maybe you would know them or your friend would!!
Dad is Meauta Mom is Esa, brothers: Alei, Nefu, Faleni
Family members from Amaua are with the last name Taui

[Sangye]

Gosh, what beautiful names.

[Brooke]

I think so to Sangye! it was hard for me to pronounce a lot of them at first!

[eileenv]

Welcome Manalolana, sorry to hear that you are having suffering all these wegs symptoms and hope that you are able to them sorted out pretty quick. I envy you living in oahu, i spent two glorious weeks there many tears ago, a truly beautiful island.

[marta]

Manalolana, hope it all sorts itself out for you soon. You're definitely among friends here. It's such a unique, cool, global group hug that it gives me goosebumps every day. Have you considered getting some eggs out and keeping them safe for a later date? I was given that option but being 43 with a 3 year old at time of diagnosis, I figured my hands are plenty full.

Sangye, a brain MRI???? That sounds big. If they found a granuloma behind my eye would they treat it any different than just dealing with a flare? I didn't know they can go in and give individual granulomas special attention. Other than knowing would there be any benefit?

[manalolana]

I will ask my friend. His family name is Foresgren.

[manalolana]

Thank you! I can't wait until I feel better so I can enjoy the "every day" things that I used to take it for granted!

[Sangye]

Marta, you definitely need to know if you have Wegs affecting your eye. They might need to intensify your treatment. If you leave a granuloma behind the eye untreated (or treat it insufficiently) it can damage the eye, other nerves in the area and brain tissue. The eye can even be pushed out of the socket. Please ask for a brain MRI just to make sure. They really should be doing this with anyone having the symptoms you do.