my vent rant

[Geoff]

Ha ha ha. I just got a great idea for a t-shirt from this experience. Bri, can you please bring me my laptop before you take off to the city tomorrow? I'm laughing already.

Typical Marta! Whilst you are lolling about in hospital its good to know you are not wasting your time!!

All the very best from a 'new weggie in the Hood' in the UK.

[Sangye]

Oh Marta!!! I was hardly on yesterday and didn't see this until today. I'm so sorry you're having such a flare. I started on 1,000 mg pred when dx'ed, so I know what that's like. You can expect to feel like you can lift a car by today but PLEASE stay in bed and try to rest. Also, if your sats are low but your x-ray looks okay, they should consider a chest CT. My x-rays always look great but the CT looks like hell. That's not uncommon.

Like the others said, I hope you let that doctor know what happened.

Hugs to you, my friend. I hope you get out soon and bounce out of this flare quickly.

[JanW]

Marta, sorry to hear that you are having a flare, so hope you get better soon!

[janNaz]

Marta,
I'm sorry to hear about your flare; It's pretty scary how this can happen so quickly. I hope you feel better real soon.

[gmyi]

Marta I had some experience with an over enthusiastic rheumy in hospital at the beginning of treatment she send to every test and analysis that she could eider necessary or not so I went for every examine that she recommended to consult with other specialist about, and so I learned that she was learning on my case so I find other rheumy and left her, I wish you a lot of health

[marta]

Yanks guys (as my little girl says). I'm on day three at the hospital so day three of solumedrol 1g - wooo hooo. I was quite a buzzy thing yesterday but my energy seems to be down today. The have found that my WBC are high - 19 (apparently healthy non-immunosurpressed people are at about 14). My liver enzymes are high, which they also were before diagnosis. My ESR has drpped a bit to 44 but that's to be expected after 2000mg of steroid action. I'm feeling a slight headache coming back and they took a sinus x-Ray to see if anthing is going on in there. This is a small hospital so no CT or any greater diagnostic tools.
Sangye, I was thinking about you as I was gobbling up my liver and onions for lunch - ha ha. I see the rheumy in a month, and he and I and my doc here are pretty serious about getting off the cyclo but gonna keep it going for a bit longer as we know it works - at least until we get a handle on things. Pred is going to be 25 in the morning 25 at night with a 5mg wean every three days starting with the evening dose, then the morning and so on and so on.

On a different note, I might have a little Weggie from Swift Current come by for a visit next week. He's gotta work on his dad but I think he can do it. I'm very excited to meet Phil face to face. Batman returns.

[pberggren1]

Was there anything going on in there?

Was your local doc able to contact my doc? I know my doc is busy. Yesterday was his first day off in 10 days. He is very dedicated.

This will actually be Batman Begins.

[marta]

No Phil. We're gonna deal with this little blip right now and once everything is ironed out we will discuss the doc options and go from there. I've found a couple of seemingly good options closer to home but I'll sit down and discuss with my doc how we can figure this out so that it's the best decision in the long run. I'm still with my guy who I ranted about but he seems suddenly more interested so we'll put out this fire and then think with a clear mind.
Rock on Batman.

[pberggren1]

If you decide to stay with your current Rheumy be sure to lay down the law with him and explain how things are done. Sometimes these docs need to be grounded a bit.

[drz]

Yanks guys (as my little girl says). I'm on day three at the hospital so day three of solumedrol 1g - wooo hooo. I was quite a buzzy thing yesterday but my energy seems to be down today. The have found that my WBC are high - 19 (apparently healthy non-immunosurpressed people are at about 14). My liver enzymes are high, which they also were before diagnosis. My ESR has drpped a bit to 44 but that's to be expected after 2000mg of steroid action. I'm feeling a slight headache coming back and they took a sinus x-Ray to see if anthing is going on in there. This is a small hospital so no CT or any greater diagnostic tools.
Sangye, I was thinking about you as I was gobbling up my liver and onions for lunch - ha ha. I see the rheumy in a month, and he and I and my doc here are pretty serious about getting off the cyclo but gonna keep it going for a bit longer as we know it works - at least until we get a handle on things. Pred is going to be 25 in the morning 25 at night with a 5mg wean every three days starting with the evening dose, then the morning and so on and so on.

On a different note, I might have a little Weggie from Swift Current come by for a visit next week. He's gotta work on his dad but I think he can do it. I'm very excited to meet Phil face to face. Batman returns.

I got real manic on that dose after a while. Staff found my grandiose delusions rather entertaining. Being high though felt rather good for a while but brain wouldn't work very well. Hope you have someone to help you monitor your care and help you with decisions.