Ulcer in my mouth

[gutless]

Palmyra-
I have a history of ulcerative colitis but had my large colon removed in 1993. High bp but okay with meds. Sero-negative arthritis.
My meds are: Myfortic, Cipralex, Avapro, Amlodipine, Buspirone, Methotrexate injection, Leucovorin, Amitriptyline, Quetiapine, Prednisone, Actonel, Calcium, Vitamin D, Tramacet
Thanks!

[JanW]

I'm not on bactrim either, but have not yet had lung involvement.

[LisaMarie]

ok mouth ulcers are the worse ...during my recent stay at the hospital i developed a funky group of lesions on my tongue ...after several scraping and test...it wasa concluded as shinglies on my tongue...hurt like you would not believe and now i have a funky fish hook design on my tongue...that still hurts ...per ID it could be months before my tongue heals...it is better since I took the the antiviral for over 14 days...but still hurts....i always get weird lesions in my mouth and just blame it on my WG......hope yours gets better soon

[elephant]

Oh that is horrid LIsaMarie, could you taste anything? Soft diet?

[LisaMarie]

i lived on yogart mostly ...it coated my tongue so i could eat other things.....my taste is starting to return.....

[elephant]

How about smoothies, yum! Glad to hear that your taste buds are coming back.

[jola57]

LisaMarie, that is hurtful few months, glad it is getting better. I get sensitive parts of tongue and funky designs but the pain is managable. I just stay away from acidy foods

[Palmyra]

Palmyra-
I have a history of ulcerative colitis but had my large colon removed in 1993. High bp but okay with meds. Sero-negative arthritis.
My meds are: Myfortic, Cipralex, Avapro, Amlodipine, Buspirone, Methotrexate injection, Leucovorin, Amitriptyline, Quetiapine, Prednisone, Actonel, Calcium, Vitamin D, Tramacet
Thanks!

I think I am late getting back to this post...you may be getting better. If so, please disregard all of the following!!

Wow there Gutless, you are on a small truck load of immunosuppressants, and the actonel combined....might make you at high risk for a little bone exposure, and possibly a bit of osteonecrosis. Osteonecrosis is generally not painful, looks white in the center, and does not heal. Did you name the site of the wound? (Be specific...upper or lower jaw, inside or out, close to the teeth, or is it on 'loose tissue'?)

Ulcerative colitis can also contribute to lesions in the oral cavity....they are usually on the inside of the cheeks, tongue or floor of the mouth. Same for reactions to chemo.

If it is on attached gingiva (meaning gum tissue that is attached directly to the bone, as opposed to loose mucosa,) I would be curious as to what your specialist recommended, as there is relatively little barrier to the underlying bone.

If bone is exposed, we treat with a little actonel holiday (usually 3-6 months) and provide a rinse of chlorhexidine gluconate that does not contain alcohol. Sometimes a round of antibiotics. The chlorhexidine is harmless in any event, and will make any oral lesion heal at a faster rate, including those caused by other chemotherapy. It may lead to a little temorary brown staining, that can be polished off by a professional.

If the lesion is expanding in size, or even simply not healing, I would see an oral specialist such as a periodontist or oral surgeon, and have them consult with your other providers.

Good luck and keep us posted,
Palmyra, BS, RDH with focus on periodontics/oral medicine

[DEE]

just been on the phone with wg consult to ask about do s and dont of dentist appointment and he kept repeating must get anti b cover before and after treatment and it was not until recently that antonel came into the equation.
trying a new dentist aswell they sound very helpful !!!!!

[gutless]

Went to my rheumatologist yesterday and she agrees that that I shouldn't have surgery on the ulcer unless the specialist suspects cancer. She will contact the specialist and discuss the situation.

Palmyra - The ulcer is right below my tooth so on the boney part. It was an oral surgeons office that I went to - the specialist I saw deals with oral pathology.