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Thread: 'Limited' Weggie introduces herself...

  1. #21
    Join Date
    Jan 2010
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    No, my doc has never done that. But for many whose doctors have never treated WG before, this is a sad reality I heard many times at the Symposium.

  2. #22
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    Oct 2010
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    Yeah. That's a sad reality.
    Wegener's is what is called an 'orphan disease'.

    We here are lucky to have a diagnose and a treatment, but I believe there is much more research needed,
    because too many drugs have bad side effects...

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