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No, my doc has never done that. But for many whose doctors have never treated WG before, this is a sad reality I heard many times at the Symposium.
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Yeah. That's a sad reality.
Wegener's is what is called an 'orphan disease'.
We here are lucky to have a diagnose and a treatment, but I believe there is much more research needed,
because too many drugs have bad side effects...
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