Always a fight

[freakyschizogirl]

My mum is down to 10mg too...blooming pred beast!
2 weeks til i see my Rheumy. Hoping the sinus pain goes away til then.
I really, really dont wanna have to go back up on the pred, was dreaming of being off it by summer

[DEE]

Oh Dee sorry your so tired, hope the docs can figure this out. How are your eye's?

Eyes doing fine back on friday for check up at hospital
Its my sinuses etc that are playing up i think i have a reason pain threashold but when down at 10mg
at the minute i only have to keep still and im off to sleep again and if i try to push through it i just sleep longer

[chrisTIn@]

2 weeks til i see my Rheumy. Hoping the sinus pain goes away til then.
I really, really dont wanna have to go back up on the pred, was dreaming of being off it by summer

I'm keeping my fingers crossed for you Freaky.
Hope your sinus pain will go away...
Take good care of yourself!

[Sangye]

Dee, I don't like that you're that tired. I still think the Wegs is smoldering.

[DEE]

Sangye im beginning to think so to , full bloods will be back soon and then will get back intouch with wg consult putting up preds today has helped abit but i know its know answer
its the kind of sleep that you need now no matter what
was wondering if it might be blood count low as it had gone down last month and people keep telling me i look pale and tired

[Sangye]

My labs looked fine for a full 2 years while the Wegs continued to smolder. I knew it wasn't under control. Even Dr Seo thought it was under control, because my labs looked fine. Wegs docs can miss it, especially when the only evidence is symptoms.

I think if your blood count is low, there's a reason. That is to say, a low blood count is a symptom of a problem, not the problem itself.

[DEE]

Understand what you are saying Sangye . cant remember if Imuran could be the cause
maybe just know im out of sorts a the moment

[freakyschizogirl]

I'm keeping my fingers crossed for you Freaky.
Hope your sinus pain will go away...
Take good care of yourself!

Thanks christTIna. See Rheumy next tues. See what he has to say, been poked today for my blood test.

[coffeelover]

Ditto! You go girl!

[drz]

For those people who report problems going below 10 mg of Prednisone, when do or did the problems appear?

What problems did you experience?

I had been at 10 mg for couple months and went down to 9 mg a few days ago and haven't noticed any changes yet?