Always a fight

[DEE]

OPPS SORRY ABOUT SPELLING MISTAKE GETTING READING GLASSES TOMORROW

[freakyschizogirl]

Yeah i'm on such a high today...its just the news i was after. Even tho they wont entertain the idea or even slightly talk about reconstructive surgery on my hooter just yet it feels good. Adds said dont go back to my local Rheumy and i couldnt agree more!

[drz]

Hi All, just a quick note to say that Adds were all very happy with me, no sign of disease activity in my nose
Vasculitis team disagreed with my local Rheumy about upping the pred and instead said to continue to lower it. So hopefully in a months time i will reach the 5mg mark! Got a steroid spray from the ENT and they will recalculate my mtx to my bmi - anyone heard of that before?
So all in all its good good good! Bloods look good, PR3 is at 3.3.
Next visit is in 2 months time.

Nice to hear some good news. Thanks for sharing this. i know they often base your meds on your body weight but didn't know they used your weight and height to calculate a BMI, but that might be the way it is done.

[Daggar]

good news..... lucky you had a "2nd opnion" so to speak...

I believe that body mass index was used in Holly's case.... as she gained some needed weight from the time of diagnosis the numbers changed.

[freakyschizogirl]

good news..... lucky you had a "2nd opnion" so to speak...

I believe that body mass index was used in Holly's case.... as she gained some needed weight from the time of diagnosis the numbers changed.

So glad i fought so hard for my second opinion now. It priceless. And reassuring to find Doctors who genuinely seem to care for you and your wellbeing. Not to mention how kind and curteous they all are, even down to receptionists and secretaries who i seem to have the most issues with. Big thumbs up for me!

[Geoff]

Great News Sam, I'm feeling the buzz that you are generating. Hope you behaved yourself and let Jonny get a good look at that likkle nose!!

[Sangye]

It makes all the difference in the world to have confidence in your docs. Glad you persisted, Sam.

[freakyschizogirl]

Great News Sam, I'm feeling the buzz that you are generating. Hope you behaved yourself and let Jonny get a good look at that likkle nose!!

I did Geoff, tho he went in without numbing it so my eyes welled up. Not the nicest experience! Eurgh! Well worth the 60 mile round trip!

[freakyschizogirl]

Just another upate from me...

Saw my local ENT who admitted i had been failed by the hospital. He said the administration and communication between departments had been very poor in the past and the pressue of having to meet government targets had taken its toll. So that was nice, was expecting him to dodge the questions like the Rheumy did. He also said he'd refer me to see a Rhinoplasty specialist at Adds even though he is trained in Rhinoplasty himself he said i should see his colleague as he thought my collapsed bridge might need several operations as well as a graft. Lovely.
I asked him the biggest question and its the one that repeats itself round and round in my head, Would i still have a collapsed bridge now if i had been diagnosed earlier? He said he honestly couldnt say but felt sure i would've had some sort of collapse requiring surgery, but maybe wouldnt have been as bad as it is today. So overall quite impressed with his reponse tho i will never see Rheumatology in my local hospital again.

[Chris G]

It sounds like you've had more than your share of frustrations with docs in the past. It must feel good to find docs you can feel confident with, and who will be honest with you. Thumbs up!