I was pleased to have found a forum for Wegener's. I was diagnosed 2 weeks ago after being sent home from the ER multiple times with a bottle of percocet for pain and an allergy medication. Being only 33 and sure of my own immortality, the dx was a tough one for me. I have poured over literature and websites and never found what I was looking for.
My story begins in June with a runny nose and a sore wrist or knee every now and then. Then one morning I woke up and could barely move. All of my joints just seemed to have frozen in place. But I kept going, thinking I was too young to be having any real problems and it would just go away. Then in August I rolled off my couch and could barely stand. I got in my car drove to the ER and thought I was going to die on the way through the parking lot just walking into the ER. (I honestly called the Ambulance Guys from the parking lot to help me the rest of the way) The blood tests come back intially with a diagnosis of RA but it was changed when my ANCA came back positive. The initial symptoms were nodules, runny nose, joint pain, anemia (requiring a blood transfusion), blood shot eyes (i scared small children lol) and blood in my ears. My symptoms were never all put together, but I am glad to finally have a name to this.
However, I am still very confused. Being so very new to all of this I still don't know what to expect. I have since been hospitalized 2 times in the last month and just recently was released after receiving 3 days of 500mg IV methylprednisone. I know I have been lucky to have a rheumatologist that is quick with treatment. I am currently on 60 mg pred, cellebrex and oddly a prenatal vitamin. I just like to be prepared. Just from reading through these forums, I know you will all be a lot of help.
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