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Thread: Finally getting off cytoxan ! and lowering preds

  1. #21
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    i dont know any more we were talking about it in conection to the fact that things could go horribly wrong if i stayed on it any longer and knowing my track record it would im just as pleased about maybe been able to get my eyes sorted out sooner than i thought
    starting cellcept this morning planning on having quietweekend as hubby home extra day next week as its one of uk bank holidays so he get the monday of work will let you know how i get on yhanks again DEEx

  2. #22
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    Hi Dee - good luck with the cellcept - have a nice bank holiday - hope the sun shines and this awful rain stops so you can have a nice few days to relax with your husband and adapt to your new medication...Fran

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    well first day of meds change over only thing noticed is i felt abit sick when i first got up and joints abit more painful but i think that what happened when i lowered preds before
    only lowered by 2,5mg
    its about 2pm and i ready for a nap catch u later DEEx

  4. #24
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    Quote Originally Posted by DEE View Post
    its about 2pm and i ready for a nap
    I think we must all be the same. I've just managed to keep awake to watch the F1 race qualifying (car racing) and now I'm going to fall asleep in my chair for an hour.
    Jack

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    Dee, I thought you said they weren't lowering your pred yet because you were starting on Cellcept. It's not ideal to change both at once. Also, I assume they stopped the ctx. Did they tell you it takes 4 weeks for the Cellcept to get fully up to speed? It doesn't do much for the first couple weeks.

    If the joint pain is due to lower pred, it'll go away in a few days.

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    That is what I was told when I went on cellcept it takes about 4-8 weeks to kick in fully. I think it took me 8 weeks to work.

  7. #27
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    Yes, and since they're starting you on a lower than normal dose of Cellcept, it makes the gap even larger. It's going from the strongest drug at full-dose (ctx) to a drug with much less punch even at its fullest dose.

  8. #28
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    they lowered preds week before but staying on 20mg for a month
    seeing wg consult in three weeks depending on blood results if any problem he will see me before
    said he needed to get me on 2000mg !!!
    maybe today is just an off day because i dont feel as though im fireing on any were near all cylinders
    Jack i missed F1 but managed to see some of the rugby
    DEEx

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    I am suprised that they didn't start you right off with 2000 mg of cellcept. Your on 20 mg of Prednisone. Dee keep an eye out if you start to feel more tired.

  10. #30
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    I'm surprised by that, too. To take you from the strongest drug (ctx) to a milder one like Cellcept, they usually start with the highest dose of Cellcept and make sure the Wegs stays controlled before lowering the dose. 2,000 mg is the usual therapeutic dose. They'd usually put someone on 1,000 mg if they've demonstrated very well-controlled Wegs for awhile and want to see how little is necessary to maintain it.

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