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Thread: Tear duct obstruction..bloody nose..severe headaches..

  1. #21
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    K well this is the update so far
    Yday morning i woke up roun 6 am.had a headache.blew my nose and te tissue was all blooody...\This time i had enough and i called my specialist he had me admitted into the E.R..later on i was admitted to the hospital to stay overnight to go thru further testing and analyist

    I had some blood work drawn..chest x rays..everything came out normal...everything..So my doctor said that it isnt the wegeners that's flaring up...But the son of a bitch wouldn't give me a bronch cuz he wants one of his colleageus to do it cuz he feels he can trust him better...thus far making me being delayed for another week...But good thing is that everything came out good...i find out nex week when i go thru the bronch wether my lungs are bleeding or not...

    Seriously considering changing docs..only fear i have is that if i switch docs my new doc will do the same bullshit my previous doc was doin to me..e.g consantly delaying me...

    hope everything goes well for me...i got discharged 2day so im glad to be home

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    Did they do a chest CT?? I have had "normal" x-rays and the CT showed much more. Go straight back to the ED if you start coughing up blood. Your doctor may be afraid to bronch you if he is not skilled at bronchs because the risk of perferating (putting a hole in) your lungs is high.

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    I agree with lightwarrior, you need a CT. This is crazy that this doctor is waiting to see if your bleeding in the lungs? I think Lightwarrior is right.

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    My x-rays never look that bad but chest CT's look disastrous when my lungs are bleeding.

    Last summer when my lungs were bleeding and the bronch didn't show huge amounts of blood, the pulmy said it wasn't pulm hemorrhage, not Wegs flaring. He said there would be much more blood. When Dr Seo heard this, he said it was ridiculous, that if someone with a known history of pulm hemorrhage is coughing up blood then it's Wegs.

  5. #25
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    Quote Originally Posted by Lightwarrior View Post
    Did they do a chest CT?? I have had "normal" x-rays and the CT showed much more. Go straight back to the ED if you start coughing up blood. Your doctor may be afraid to bronch you if he is not skilled at bronchs because the risk of perferating (putting a hole in) your lungs is high.
    Exactly the same with me. Different things show up with different technologies. Though lifetime radiation exposure is an issue, I think most doctors will order up the next level of testing when a patient's issues continue but there is nothing in the tests to support the symptom (spitting up blood!).

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    Uhhhhhh so pissed...now i guess i gotta request a chest ct...I dont even know whats going on man..fml...I mean i feel great...no joint pain...no red eyes..no shortness of breath...i have a good appetite...the doctors such as the ENT said the blood from my nose is due to dryness so he prescribed me some nasal gell and i mean its worked ...iunno
    i just wish you know that this **** would go away...I dont know what im gonna do

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    Ballfoflife it is best to get the CT scan. Sure you could be coughing up post nasal drip blood, but you just don't know. I use to use the nasal gel at night and it seemed to work. Then I did nasal rinses morning and night. Thanks for keeping us update! Big hug to you.

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    @Sangye
    Correct me if im wrong ..so your saying that the bronch showed that you weren't bleeding from the lungs?? And it wasn't pulmonary hemmorage or flare up of the wegs??If its niether of the two than why were you coughin up blood?? :/...And wht did u do to stop the coughing of the blood?

    And @Elephant thanks a lot eh..means a lot ...No one really understands our struggle..Its not easy bein in our shoes..I know its tough but im sure we all will get through this

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    The bronch showed some blood in my lungs, but not lots of it. The pulmy said if my lungs were bleeding there would be lots of blood. That was ridiculous. My lungs were not massively hemorrhaging, but any pulmonary hemorrhage is Wegs. Dr Seo put me on ctx and later rtx. Ctx doesn't work for me.

  10. #30
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    Coughing up blood and a bleeding nose say Wegener's to me and we all know how unreliable the blood tests are. That is why the disease is so difficult to diagnose.
    Jack

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