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Thread: 20 year old son

  1. #81
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    Aneinu, nice seeing you...Glad things are going well... Hope you're handling things well.... Deb.

  2. #82
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    Quote Originally Posted by Aneinu View Post
    Sorry for not keeping up.
    Latest check ups in Cleveland were all good....thank God.
    Went today to the group in Hackensack.
    They suggested strongly that he takes bactrin or something like that) to prevent pneumonia.

    Sent from my SM-G920V using Tapatalk
    They want him on bactrim, probably 3x a week, as prophylaxis for the type of pneumonia that killed many HIV patients before effective treatments were discovered.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #83
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    Yes, three times a week.
    There was a recent case of gpa where the person passed from that type of pneumonia.

    Sent from my SM-G920V using Tapatalk

  4. #84
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    Hi. I missed you around. I am glad all is well. Many of us are on bactrim. Just need to check regularlly the liver enzymes and creatinine.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #85
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    Quote Originally Posted by Alysia View Post
    Hi. I missed you around. I am glad all is well. Many of us are on bactrim. Just need to check regularlly the liver enzymes and creatinine.
    Thank you.
    Life business gets in the way.
    So we now have two teams of doctors managing his care; not really sure how that will work.
    Hackensack and University Hospitals.
    They both seem to be competent.
    Wondering why the initial team didn't put him on Bactrim; we will ask.
    Doctor checked him out and said, "If I would not have read your report, I'd say that you're an ordinary 20 year old (with puffy cheeks)."

  6. #86
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    Quote Originally Posted by Aneinu View Post
    Doctor checked him out and said, "If I would not have read your report, I'd say that you're an ordinary 20 year old (with puffy cheeks)."
    Good name for a web site: butyoudontlooksick.com

  7. #87
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    Aneinu, nice seeing you... Birdie, that should be a site for real... Clever... Debra.

  8. #88
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    Quote Originally Posted by debra View Post
    Aneinu, nice seeing you... Birdie, that should be a site for real... Clever... Debra.
    It actually is a site.
    Check it out.

    Sent from my SM-G920V using Tapatalk

  9. #89
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    Oh wow, wasn't sure were I saw it, thought just the common saying here. I think maybe I did check this, a couple year's back? Thanks, Aneinu... I will look... Glad you're here! Deb...

  10. #90
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    I definitely checked out that site, just now, and bookmarked it. It belongs to the woman who wrote The Spoon Theory. It is entertaining and true.
    Anne, dx'ed April 2011

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