I come to the site and read or reply!
I try to gleen as much info as I can and then make comparisons! I think there are times that I go into denial and have to re-enforce the fact that I have Wegeners!
As I'm also on oxygen I visit a COPD site and a diabetic site.
I relate a lot to the COPD site about as much as I relate to the Vasculitus site.
Its hard to keep up on all the post but my reason for visiting the sites are that the COPD is a result of the Wegeners and the breathing is the most difficult part of my disease and is the most prominent in my day to day living!
Also I am always looking for clues to new symptoms or signs of flares!
I skip in and out because COPD and Wegeners are progressive diseases but I am guessing that the COPD aspect is going to be my fate and the progression is faster than the wegs but I need to have all the info available to me to help both problems. I still pop in to the site even if I don't post I pop in regularly!
What it comes down to is I visit multiple sites and post equally on all that I visit!
Nobody knows how we got to the top of the hill. But since were on the way down, we might as well enjoy the ride!
James Taylor, Secret Of Life
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