pberggren memorial thread

[Alysia]

Phil is moving to the ICU because his breathing is worse. I have tickets to fly to him at Sep 21. I am so scared. I can't stop crying. Please pray. Thanks.

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[Alysia]

Phil's mother just talked to the doc. No ICU. Yet ??? But ICU team are also taking care of him. His breathing is worse. Please pray. Thanks for being here.

[Thinker]

Keeping both of you in my thoughts and prayers. It sounds like he has a very good team of doctors and they are keeping a close watch on him. Hopefully the treatments and medications will take effect soon and he can start to recover.

[annekat]

Yes, we are here, and Phil is on everyone's mind with prayers and loving and healing thoughts. If he goes to the ICU, don't worry, they will take good care of him. Big hugs to you and gentle ones to Phil.

[Jayne 14]

Praying for you both xx


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[Alysia]

Phil is in the ICU. He said that he is getting there the best care. the WG is flaring. He got rtx the night b4 this one. He also got solu medrol 1000mg and now pred 80mg. I wonder if the hole in the lung that made it collapsed, was caused by the WG. If anyone knows any info that can help please write it here. He has hard time breathing and almost no energy. I am madly scared and crying a lot. I have a flight on Sep 21. There were not places in flights b4 and I am kind of freaking out being away from him when he is going through this scary fighting. Please pray for him. Thanks for being here. Love u.

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[Alysia]

I just talk with his nurse at the ICU. The markers don't show that its WG. But are the markers what count ? They are trying to find out what makes his breathing worse. If anyone has any idea please write here. Thanks.

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[pwc51]

For me my WG flared ahead of the markers showing it! Sadly it was not until the markers had caught up that my Rheumy believed it - by then I needed more treatment than if they had jumped earlier. Maybe it is the same for Phil?

[Titus3:2]

Alysia,I will briefly tell you what happen to me.My left lung totally collapsed from a left bronchial stenosis in 1988,and the docs refused to try and save the lung.The stenosis was caused by WG.Fast forward to August 2011.This is the short story.I had a pheumothorax in my right lung ,and barely made it to the hospital. A chest tube was inserted,and saved the day.The pheumothorax was caused by WG.There were no markers other than inflammation.The lung inflated,but was leaking , and the chest tube could not be removed.To seal the leak in my right lung the pulmonary doc did a blood patch.Blood was taken from my leg,and injected into the chest tube,and this sealed the leak.There are various methods used to stop the leaking.The blood patch is the most conservative.If the lung or lungs are collapsed because of a stenosis dilation is the best hope.Phil's problem is very complicated.I have been focusing all my prayers on Phil.Thank goodness he has you.Keith.

[BookNut]

Alysia, Thank God Phil has you and his family fighting for him. I am praying that he will soon beat all these problems with his indomitable will and you at his side...his warrior love!