Way Sick

[JanW]

Good luck Sangye!

[Palmyra]

Hey there Sangye,
Could it be a viral cold? If you are having GI issues with the Augmentin, Dr P here (joke...) would advise you to discontinue. My daughter (Crohn's and Weg,) finds the only antibiotics her gut can tolerate are: azithromycin (especially for respiratory infections, hope you are not allergic to the e-mycins!), bactrum and flagyl.

All but bactrum are used to treat colitis.
Have you tried any pro-biotics for your gut? It helps restore flora after a bout, for the daughter.

Good luck to you dear...no fun being under the weather.

[elephant]

Hi Sangye, I am allergic to penicillin, but can take ceftin for sinus infections and other bacterial infections. It doesn't seem to cause stomach issues for me either. Glad you are going to the doctor, are you seeing the WG specialist or GP?

[Brooke]

Get well soon Sangye!

[Sangye]

I'm allergic to azithromycin and the fluoroquinolones (Avelox, levaquin, cipro). I don't think the reaction to amoxicillin is an allergic one, just a severe GI intolerance. (Maybe that's an allergic reaction, I don't know) I always take probiotics and it didn't touch it. The pain started almost immediately after the first dose and got worse with each dose.

The cold was definitely viral and I held off taking an antibiotic. My PCP gave me the scrip to use if I got worse. I'm not convinced that it's bacterial, but figured it was worth a try to see if I improved.

Thanks for the well wishes, everyone.

[elephant]

Sangye how are you feeling today?

[Sangye]

My stomach feels better-- whew! Otherwise I feel the same as I have for the past week-- very draggy, fatigued, some congestion (not tons), cough. I'm not getting worse (not drastically, anyway) but I'm not getting better. I think the Wegs is waking up more and more because I have a fair amount of joint pain and stiffness. Maybe increased disease activity is making it harder to fight off this bug? I have no idea what's going on.

I do labs at JHU on Friday. I'll drop a note to Dr Seo in the next couple days to let him know everything.

[LisaMarie]

Hey augmentin is a wicked drug because it has Clavulanate Potassuim in it which tears up your gut and I am allergic to so I can not take augmentin but I can take other PCN...so maybe you have an intolerance to the clavulanated potassium...just a thought ,,,,hope you are feeling better ?

[drz]

My stomach feels better-- whew! Otherwise I feel the same as I have for the past week-- very draggy, fatigued, some congestion (not tons), cough. I'm not getting worse (not drastically, anyway) but I'm not getting better. I think the Wegs is waking up more and more because I have a fair amount of joint pain and stiffness. Maybe increased disease activity is making it harder to fight off this bug? I have no idea what's going on.

I do labs at JHU on Friday. I'll drop a note to Dr Seo in the next couple days to let him know everything.

Do any of your markers generally increase along with clinical symptoms? I am about the same state with some mild symptoms like fatigue, joint pain, congestion etc and markers have increased some. I expect I will increase my Azathioprine today or tomorrow since my TPMT test results are back from Mayo and hope that helps contain the Wegener's. What meds are you taking to control the Wegener's at this time. Are you taking anything that might cause side effects like what you are experiencing. Hope you get better soon. I remember one of my doctors saying when I was first diagnosed and in the hospital that, if you are not getting worse, then you are getting better. This seemed to be generally true even though it sometimes took awhile. Good luck in getting it figured out.

[pberggren1]

Oh Sangye, I sure hope you are not flaring. I cried for you last night after reading what you are going through with the antibiotics. Please get better soon. I am always thinking of you.