pberggren memorial thread

[Psyborg]

Even in the best hospitals with great care it seems necessary or at least very desirable to have a guardian present to over see your care. I believe my survival was due to the constant supervision provided by my family who directed my health care when I was unable to do so. They can ensure hospital staff are fully aware of any important changes in ones condition and call for help when needed. Med errors are one of the leading causes of death (third in USA) in hospitals. Phil is very lucky to have such a dedicated guardian with him. But it is a very stressful job so Alysia try to take good care of yourself too. Is there anyone there to help support you or give you a break?

I agree Phil is lucky to have you there with him. Please do watch your own health. ALl the stress of worrying for Phil can't be good for you as well I know he would want you to be well. Still praying for both of you.

[Yvonnea]

Sending prayers and healing thoughts from Sweden for you both.

[annekat]

I have seen on Facebook that Phil's parents are on their way back again. They have been ill and that's why they've stayed away for a bit. Alysia, yes, you need some breaks here, though I know it is hard to leave his side. Having more loved ones there for support will help. Bless you all.

[mrtmeo]

Thank God Alysia that you were there to see there was a problem and get something done.
So scary.
I am very suprised that they would give someone with respiratory problems an opioid.
Opiates suppress the breathing.
Keep a good eye on him and ask all the questions you can!
My prayers are with you both!

[Thinker]

What a frightening experience for both of you! Phil is blessed to have you there with him and watching over him so closely. I agree with mrtmeo about their choice of a pain medication. It doesn't make sense unless their was no other reasonable choice for pain control. Take good care of yourself, and please share our prayers and words of support with Phil's parents. After becoming a parent myself, I now understand how painful it is to watch your child suffering or ill and I'm sure this has been a very difficult time for them also.

[Alysia]

Update: my sweetie looks today much better. He is awake and his sense of humor is back. Still on higher oxygen. No more on bi-pap after he vommited. They still checking his blood gas. I am still afraid that they will put him on tube, one nasty doc said they might if this blood gas test will not improve enough. Tube means the end. Please pray that they will not put him on tube. We had parade of docs today: the amazing lung doc, the ICU doc that saved his life, the doc that is handling the Ivig, infectious diseases expert, and resident from rheumatology. The plan is to give him more antibiotics to cover all options and to continue the Igiv according to Igg level. Seems like the event of yesterday shaked them to start fighting for my sweetie. Please dont stop praying. Thanks for your caring. Love you.

[Alysia]

I am ok. Eating healthy. Sleeping enough. Having my daily walking from my hostel to the ICU. When my sweetie holds my hand, which he does most of the time, and yesterday all the time after he was back, I dont need anything. Just that he will get better.

[Pete]

This sounds much better about both of you. Hoping it continues!

[Psyborg]

It is encouraging that he's feeling better.

[mrtmeo]

Update: my sweetie looks today much better. He is awake and his sense of humor is back. Still on higher oxygen. No more on bi-pap after he vommited. They still checking his blood gas. I am still afraid that they will put him on tube, one nasty doc said they might if this blood gas test will not improve enough. Tube means the end. Please pray that they will not put him on tube. We had parade of docs today: the amazing lung doc, the ICU doc that saved his life, the doc that is handling the Ivig, infectious diseases expert, and resident from rheumatology. The plan is to give him more antibiotics to cover all options and to continue the Igiv according to Igg level. Seems like the event of yesterday shaked them to start fighting for my sweetie. Please dont stop praying. Thanks for your caring. Love you.

You are definitely in our prayers daily.
It's possible that he may have some withdrawals from the opiate overdose.
The worst of the withdrawals last about 3-4 days.

Also, I was wondering if they checked his ANCA and PR3 values and if they are elevated, could they use plasma exchange?
Plasma exchange will remove the anca's, but not sure if it removes the pr3's.