Search:

Type: Posts; User: alan1107

Search: Search took 0.00 seconds.

  1. Replies
    0
    Views
    3,518

    Almost one year later, in remission

    I was diagnosed with GPA 11/22/22. Started infusions of Rituximab. Discovered in April that riyuximab was not working. Switched me to Cytoxan. Only did 4 infusions because of the risk associated...
  2. Thread: Been a minute

    by alan1107
    Replies
    5
    Views
    1,708

    Re: Been a minute

    Something I have found that takes my mind off of things is writing. You can use a computer, but I really enjoy some old school pen to paper. If you are thinking, "but what would I write about"? ...
  3. Replies
    8
    Views
    1,383

    Re: Early Stages GPA Treatment

    Hey Jason,

    I had two. December 13th and 28th. With no relief in my symptoms by April, they did another CT and the pulmonologist said my lungs looked 10 times worse than they were in November...
  4. Replies
    8
    Views
    1,383

    Re: Early Stages GPA Treatment

    Upper respiratory only for me (cough, sinus, wheezing and shortness of breath. Diagnosed in November 2022, started Rituxan infusions in December with high dose steroid (Prednisone). No relief from...
  5. Replies
    6
    Views
    1,184

    Re: Recovering from symptoms question

    Thank you for your response Shell. Like you my Wegs is just upper respiratory. Had a second Bronc today and it has been determined that my initial does of Rituxin has been a fail. During the...
  6. Replies
    0
    Views
    434

    Rituximab Fail

    Had a follow up CT yesterday to see how well my lungs have progressed since my initial Rituximab infusion in December. The large inflammatory lesion in my right upper lung has improved significantly....
  7. Replies
    5
    Views
    992

    Re: Seasonal Allergy Question

    Thanks for everyone's input. It really helps navigate this new lifestyle.
  8. Replies
    5
    Views
    992

    Seasonal Allergy Question

    So coming up fast on pollen season. This will be my first pollen season with WPA. I typically start over the counter allergy medicine the first week of March. Has anyone had issues with allergy...
  9. Replies
    6
    Views
    1,184

    Re: Recovering from symptoms question

    Thanks so much for your response Pete. That makes me feel a bit better. I'm just so tired of being sick everyday and it feels like it will never end. It's good to know I just need to be patient.
  10. Replies
    6
    Views
    1,184

    Recovering from symptoms question

    Hello everyone. I hope all of you are feeling well.

    So I was diagnosed November 2022, had my first infusion of Rituxin 12/13/22 and my 2nd dose 12/28/22. My primary symptoms include stuffed...
  11. Replies
    3
    Views
    946

    Re: Evusheld is no longer effective

    I was scheduled for my first Evusheld treatment this Thursday. Hopefully, they will develop something else to help protect us.
  12. Replies
    6
    Views
    1,798

    Re: Newly Diagnosed

    My wife is a CRNA with Tryon, so I almost ended up going to a Rheumatologist within Tryon, but because my Wegener's started as what they thought was a Pulmonary issue, I was initially referred to an...
  13. Replies
    6
    Views
    1,798

    Re: Newly Diagnosed

    Hello Masha,

    Yes, Fort Mill in Baxter. I start my infusion Tuesday. I talked to my Rheumatologists Friday at consult about Evushield. He agreed and said we will start it after my 2nd...
  14. Replies
    6
    Views
    1,798

    Re: Newly Diagnosed

    Hello Pete. Thank you so much for reaching out and especially for giving me a better understanding of what to expect. I look forward to being able to take some nice walks again. Also, thanks for...
  15. Replies
    6
    Views
    1,798

    Newly Diagnosed

    Hello everyone. I'm Alan and 58 years old. I'm from South Carolina (the Charlotte area). I was officially diagnosed a week and a half ago. I have a consult tomorrow with Rheumatology. Then they...
Results 1 to 15 of 15