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Has any of the women with WG had a return of cervix cancer since taking RTX ?
I head to Mayo for my 3 month check up next week and was not sure if I should mention female problems to DR Specks or...

I am at a loss...Light Warrior will be truly missed...I have had problems logging on so I have missed alot. Christi was am amazing support person for all of us. Rest in peace and dance with the...

ok we finally know why my leg was contracting...i finally total blew a disk in my back that caused more stenosis so i am now numb knee down to foot on left ....you know that annoying tingling...

so glad to see u are back...missed you and water is the safest thing i know to get rid of brown spots...hope your new house os wonderful...i am still trying to get mine together...and my golden...

hello all...i can not seem to start a new thread ...or post from my phone...and has anyone heard from Sangye??? i had an MRI of both hips done...looks good...doppler to rule out DVT in left leg...

Congrats to you and your family for the blessing of a sweet baby...can not open pic but I am sure she is beautiful

Thanks for the hug...I am a nurse too and have worked the gamet..icu peds and adult ER OR cardiac med/surg, peds neuro..home health etc....I am doing quality review desk job and sneak out to do...

Go reading ..Thanks Al..I must agree this lovely dog has changed my view on life and now I live for each precious moment...I am not lucky enough to have the supportative husband...he can not handle...

I get them too...sometimes they itch deep down ...other times they don t and i usually have a bruise after wards

I drive to Mayo..about 7 hours one way...just finding a co pilot during the summer months is hard ...most people use that time to vacation with family....but it will all work out...one way or...

Phil
I did RTX and had complications and started with mini flarees as soon as 1 b cell appeared and my trach closed to 50% with 11 b cells so we did RTX again in January but only 2 treatment...

Ok Mri finally scheduled for Friday...Denist on Thursday to see what dental work can be done now...I go back in July to Mayo to discuss CTX po daily for 6 months...not really looking forward to...

ok my bio dad has some info for me ..I will call him and post it tonight...I am suppose to be able to speak with the person that has it in her brain and discuss her treatment...i will try to...

I know MRI s don t have radiation but i will be a glow worn none the less...this hip pain is so weird my toes draw up and my muscles feel like they are contracted...thru the day it eases up but...

Fatigue is just one thing we have to live with and pray it don't get worse...hate it but deal...taking more naps helps some but not always..kinda like sleeping your life away..not my idea of fun or...

Al,
did you not know I am the weird on here..abberrent right subclavian artery that attachs below my left on the aortic arch and goes between my trach and esophagus...making a trach surgery very...

Al...promise not to laugh...I went outside on a windy day...i am highly sensitive to the stuff and my landlord was showing me the places to avoid when i mow till they can get it cleared out...yes i...

sorry to say they can't....and the more we function the less they understand...i had my trachea dialted in December and every one at work in the the hospital commented on how pink i now was and they...

i know they live in Indiana...i will try to get a hold of him and get you some info tomorrow...God Speed

ok guys..I have been away for a bit. between having a hard time getting internet service and getting on the page i have felt lost...so much is going on...I failed the 2 dose RTX ..had a flare they...

My bio dad called to let me know his friend s wife has WG with brain involvement...she is getting aggressive treatment..so please insist they do something

Hello I have missed you all so:biggrin1: much. I have been considering appling for SSI since i continue to have increased fatigue and fail treatments. I have pride and work as much as I can but have...

So sad...I am a nurse in a small rural hospital and we are like family...I know the places in the city would not accomadate my every 3 months trips to Mayo and KU...o am very blessed...your co...

Bad Phil...you know we can not take our meds and drink alcohol....lol...I try mediation and warm compresses on my joints and back...or a warming blanket...just a thought...love ya Phil.Burnie more...

The US is so covered its hard to tell....I did note no markers in Italy or Sicily...maybe we should move there....just a thought