thanks for the info
Type: Posts; User: kelly
thanks for the info
my second infusion i ended up in the hospital with empyema (fliuid on the lungs) and a chest tube i was in cridical condition for 3 days and in the
hospital for 11 days my 3rd infusions i cought a...
i an going for my 4th rituxan treatment next week does anyone do immunoglobulin treatments i did my first on last week and my dr. wants me to do this monthly to help the immune system as i have been...
yes i also got type 2 diabetes from high doses of prednisone in march i have been of and on prednisone since 2008 in March i was in the hospital with a lung infection for 11 days with high doses of...
hi Masha i have had this Wegener's since 2008 was in remission from Jan 2016 to may 2018 had a flair in May of 2018 went back on pred.and mtx in Feb of this year the mtx quit working
so i received 2...
took the words out of my mouth awesome
hi Becky i am also from Calgary was diagnosed in Sept 2008 i have been going to the rocky view there are 2 doctors there that have been awesome who are you seeing maybe we can share some info let me...
your story sounds like a deja vu I also have been married for 36 years and also have lost a daughter in 2005 and was diagnosed with wegeners in 2008. I also have 2 wonderful granddaughters I also...
I had the same thing happen to me I stopped taking pred in jan of this year I was going to go back on it I also thought I was having a flair did blood work it came back normal like you it's the best...
go for it if your able i have been to Mexico of all places Buffalo Vancouver Montreal and I going ti the Daytona 500 in A couple of weeks. i always fly with a mask on when we went Mexico my wife and...
hi Phil yes my DR told me to try sport drinks I don't have them very often. I am extreamly active when I go to a spin class my calf muscles cramp up i drink about 2 liters of water and they still...
i also have had cramps in my hands more so whern I am using my hands when putting stuff together with tools my hands cramp up a few hours later I am also on Methotrexate my DR told me to try sports...
awesome to here take care
i go to the gym 3-4 times a week i lift more and can do more cardio then ever i have alway been active but never as strong as i am now i am very greatful for feeling the way i do im still on 5 mg...
hi Cindy i also had those purple sores on my hands and one under my right index finger and lost the tip of it how about you are your fingers ok also i have noticed that when a flare comes on i get...
hi bips i totally fell the same way i to had full blown wegeners and was diagnoised in sept 2008 with the prednisone i had a weight gain my wife and i joined a gym and i have lost 45lbs i have always...
Hi Pmarsh not that it matters i am from calgary. i was diagnosed in sept 2008 i had just turned 50and i thought i was going to die i have been on meds for the whole time i put on 40lbs and proud to...
hi germaine i have had some vision problems also i have been to specialists and i am do for a nother eye exam in march. my vision is blured mostly at night and sometimes in the moring readine the...
they have cut my meds in half im still on cyclophosphamide prednisone,septra and didrocal. i go for a follow up next thursday the doc wants me of the cyclophosphamide but not untill the end of nov.....
i was diagnosed with wg on sept 1 2008. i was so glad that the dr's found out what i had i was in extream pain for three months all my jonts were barley walk i couldn't sleep my ear was sore i had...
Today 09:52 PM - permalink
kelly
i was diagnosed with wg on sept 1 2008. i was so glad that the dr's found out what i had i was in extream pain for three months all my jonts were barley walk i...