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  1. Replies
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    Thanks for those interesting Links Phil, it is...

    Thanks for those interesting Links Phil, it is what we have been suspecting that it is not as rare as what is thought. As for the flu vaccine I have never taken my children to get it because I never...
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    Hi Anth, thank you and I am sure he is watching...

    Hi Anth, thank you and I am sure he is watching over all you weggies, and if I know Brandon he is really giving the doctors a heard time
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    Barbara, I agree with Alysia you need to find...

    Barbara, I agree with Alysia you need to find another doctor that knows what he is doing. Don't give up, life is too precious!!!
  4. Thread: Hi Everyone

    by Linda22
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    I think the pamphlets are an excellant idea that...

    I think the pamphlets are an excellant idea that we can distribute. I have e-mailed the CEO of the Johannesburg hospital to ask for assistance in the awareness campaign, but surprise, surprise I have...
  5. Thread: Hi Everyone

    by Linda22
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    I have read every story that has been posted on...

    I have read every story that has been posted on the site and the symptoms that have occured. I am trying to think back if Brandon had any of those symptoms that we maybe missed, but he didn't the...
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    Hi Anth It is a pleasure to meet you too. Thank...

    Hi Anth
    It is a pleasure to meet you too. Thank you for sharing your story and I did read every word:biggrin1:

    I experienced the same problem with incompetant nurses when my son was in hospital,...
  7. Hi Dede I understand what you are feeling even...

    Hi Dede
    I understand what you are feeling even though I have not got WG myself but I know what it is like to feel so alone!!!!! What I have learnt through my tragedy is to take it day by day, I...
  8. Thread: Hi Everyone

    by Linda22
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    Today is 7 months that Brandon passed away and it...

    Today is 7 months that Brandon passed away and it has not got any earier trying to get used to life with him. There is a hole in my little family. Being a single mother and basically bringing my...
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    In my opinion I think that WG is not as rare as...

    In my opinion I think that WG is not as rare as what the statistics tell us. Yes we have to go by it because that is supposedly the ratio that has been treated, But in my son's case, where the...
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    Is Wegner's as rare as what the medical...

    Is Wegner's as rare as what the medical profession and the researchers say it is or is it becoming a little too common? The specialist that treated my son also told me that more than likely it was...
  11. Thread: Hi Everyone

    by Linda22
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    Barbara, I agree with Anne it is a brilliant...

    Barbara, I agree with Anne it is a brilliant idea. People definately need to be made more aware about auto immune conditions especially that there are killers out there like Weggies and Goodpastures...
  12. Thread: Hi Everyone

    by Linda22
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    Dear Alysia Thank you for your reply on my...

    Dear Alysia

    Thank you for your reply on my son's story and I am so glad that I found this forum. I am glad to find people that understand what Brandon went through and sometimes it stills just...
  13. Thread: Hi Everyone

    by Linda22
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    I would like to say a sincere "Thank you" to all...

    I would like to say a sincere "Thank you" to all of you for your kind messages and condolences. My mission at this stage is to try and start a foundation in my son's name to make people more aware of...
  14. Thread: Hi Everyone

    by Linda22
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    32
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    2,738

    Hi Everyone

    I am from South Africa and I would like to share my sons story with everyone because he lost the battle with Wegners.
    Losing a child is the worst pain that anyone can experience and it should not...
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