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Type: Posts; User: Erin2014

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  1. Replies
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    Hi GrandmaNel, Hoping your treatment is going...

    Hi GrandmaNel,
    Hoping your treatment is going well Wow 4 grandkids! They must keep you busy. I have 3 kids (20, 15, and 14). These teenagers - what were we thinking! I also was diagnosed later in...
  2. Thread: Donations

    by Erin2014
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    384,163

    Hi Andrew, One quick question - when I tried to...

    Hi Andrew,
    One quick question - when I tried to make a donation I got a system error because I didn't insert a territory (which is obviously for Australia). Addresses in Canada have the city,...
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    Hi GrandmaNel, Sorry you are not well. Yes I'm...

    Hi GrandmaNel,
    Sorry you are not well. Yes I'm in Ottawa. How about you?
    I can't get to the annual meeting, but I'm hoping to attend future events.
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    Vasculitis Foundation Canada

    To my fellow Canadian Weggies - does anyone attend the events hosted by the Vasculitis Foundation of Canada?
    Here's the link to their home page: Vasculitis Foundation Canada

    Thanks
    Erin
  5. Thread: Good news...

    by Erin2014
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    4,387

    What great news! Thanks for sharing and stay...

    What great news! Thanks for sharing and stay heathy:thumbup:
  6. Hi Tobey, I had pn in my feet too! Now I only...

    Hi Tobey,
    I had pn in my feet too! Now I only have slight pn in my right ft. I used to drive me crazy but now I don't really notice it. I remember when it was at its worst - taking a shower has...
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    Hi Jax, I feel for you too! Wegs has changed...

    Hi Jax,
    I feel for you too! Wegs has changed many people's appearances...
    I was on pred (60mg) from Oct 2014 until I tapered off in May 2015. During this short time I noticed that my front lower...
  8. Hi David, I was diagnosed in Oct 2014. I had...

    Hi David,
    I was diagnosed in Oct 2014. I had kidney, lung, sinus and hearing involvement. After my initial treatment of cyclophosphamide (125mg) and prednisone (60mg) daily, I stopped the cyclo and...
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    Hi everyone, Just catching up on the recent...

    Hi everyone,

    Just catching up on the recent posts. I hope everyone had a wonderful Christmas and wishing you and your families a Healthy and Happy New Year!

    We're in the middle of a beautiful...
  10. Replies
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    7,668

    Hi Megan, don't feel guilty, I too saw these...

    Hi Megan, don't feel guilty, I too saw these stats after my diagnosis (Oct 2014). I have the big four (kidney, sinus, lungs and ENT) and 3 kids so I was really worried. However, over the last year...
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    Hello Marta, What a wonderful post!! I...

    Hello Marta,
    What a wonderful post!! I wholeheartily agree that this forum is a HUGE part of the healing process. The members provide me with so much positive energy and hope. It is disheartening to...
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    Welcome to the forum Skempins, I'm a fellow...

    Welcome to the forum Skempins,

    I'm a fellow Ontarian (Ottawa)! I'm a newbie too and have found this forum very informative and the members are very supportive.

    I was very ill before my...
  13. Replies
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    22,364

    I love this idea! Unfortunately I'm in Ottawa,...

    I love this idea! Unfortunately I'm in Ottawa, Ontario, Canada and since my diagnosis I haven't met any Weggies :sad: Any ideas??
  14. Replies
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    13,546

    Happy Birthday Andrew (don't know you well enough...

    Happy Birthday Andrew (don't know you well enough to call you an old fart!) Thanks for being so welcoming to the newbies on this forum:thumbup:
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    Hi Teri, I'm so sorry about Kota - what a...

    Hi Teri,

    I'm so sorry about Kota - what a beauty!! I'm a dog lover too and Oreo, my husky/sheppard cross is my love, he gives unconditional love and he was my faithful companion when I was really...
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    Welcome Margaret! I'm also a newbie. I'm in a...

    Welcome Margaret! I'm also a newbie.
    I'm in a medicated remission as of Thursday!! I was diagnosed Oct 2014, so this news was my anniversary gift. My bloodwork has been very stable in the last...
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    Hi Debra, Sorry to hear you are feeling...

    Hi Debra,

    Sorry to hear you are feeling crappy!

    Not sure if this will help... While I was on pred my kidney specialist prescribed 70 mg Alendronate orally once a week. It can cause esophagus...
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    Hi Trena, This month is my one year...

    Hi Trena,

    This month is my one year anniversary!! Docs are very happy with my progress. My sinuses and hearing are now stable. My lungs took a bit longer to stabilized - had a nasty infection in...
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    Hi Trena, The neuropathy started a few months...

    Hi Trena,

    The neuropathy started a few months before I was diagnosed. Unlike many members of this forum, I don't see a rheumatologist - my nephrologist is my main physician. She told me that...
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    Hi Trena, From one newbie to another -...

    Hi Trena,

    From one newbie to another - WELCOME! Lots of support and information on this forum. Your diagnosis intro was very similar to mine, minus the ICU stay, but I also have kidney, sinus,...
  21. Thread: First Flare

    by Erin2014
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    3,039

    Hi JimmyJames, Thanks for your post. I'm new...

    Hi JimmyJames,

    Thanks for your post. I'm new to the forum and diagnosed a year ago. I'm started azathioprine in Jan - 150 mg and stopped pred in May. I haven't had a flare so I can't comment on...
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    Hi, Thanks for your post. I was diagnosed last...

    Hi,

    Thanks for your post. I was diagnosed last year so this was news to me. I just contacted the Vasculitis Foundation Canada and will also be donating my DNA to Dr. Siminovitch, Mt Sinai in...
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    Thank you all for your kinds words of support and...

    Thank you all for your kinds words of support and great advice on diet and exercise. I really needed a kick in the butt so THANKS!

    I mentioned to a few people at work that I was going to...
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    New Member Intro

    Hi everyone,

    My name is Erin, and I was diagnosed in October 2014 at age 55 (do you celebrate your diagnosis anniversary - the new normal??)

    From what I've read so far, my story is similar to...
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