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  1. Thread: Jack - Rembered

    by Sangye
    Replies
    52
    Views
    2,962

    What terrible news. I don't think I knew Heather,...

    What terrible news. I don't think I knew Heather, but the loss of any Weggie always hits hard. I hope her suffering was minimal. May her loved ones find peace and comfort.

    Vdub, I'm glad the mtx...
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    LOL I occasionally take a peek just to make sure...

    LOL I occasionally take a peek just to make sure you two are behaving. I'm looking at you, Hammy and Dale. :wink1:
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    Fantastic to hear the news, Hammy. Go enjoy...

    Fantastic to hear the news, Hammy. Go enjoy yourself! :hug3:
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    I agree, too. The hospital will not admit...

    I agree, too. The hospital will not admit liability or malpractice to you, that is for certain, but there are regulatory agencies that oversee hospitals in Canada. The hospital is obligated to tell...
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    Sticky: Docs will help your Docs! :biggrin1:

    Docs will help your Docs! :biggrin1:
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    Sticky: I'm glad you're doing that, Tom. I did it for...

    I'm glad you're doing that, Tom. I did it for several years and then stopped the past few years, because I felt I had developed a good grip on my background Wegs symptoms/ symptoms from other...
  7. Thread: Eastern USA?

    by Sangye
    Replies
    75
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    14,096

    I'm glad they finally diagnosed you properly,...

    I'm glad they finally diagnosed you properly, before Wegs did even more damage or took your life. When I was first diagnosed (2006) I developed "uncountable" numbers of clots in my legs and lungs...
  8. I am so sorry to hear that she's doing poorly....

    I am so sorry to hear that she's doing poorly. Those are all such serious problems. I hope Amy is getting excellent care at a major hospital. Let us know if there is anything we can do for you. You...
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    Hi Michelle! I don't watch NCIS so I don't get...

    Hi Michelle! I don't watch NCIS so I don't get the reference, but at least for the time being we don't need no stinkin' Plan C. :biggrin1:
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    Right now I get rtx every 4 months. We were doing...

    Right now I get rtx every 4 months. We were doing a single half-dose infusion and now we've bumped it up to a single full dose. Doesn't seem to have made a big difference though. Plan B is to do it...
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    That's really good to hear. I'm okay. Not...

    That's really good to hear.

    I'm okay. Not sure the rtx is working that well anymore, but since it's still doing something and there aren't any alternatives for me we're plugging along with it.
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    Hahaha. Hi Debra! Nice to see all of you. I miss...

    Hahaha. Hi Debra! Nice to see all of you. I miss you too and hope you're all doing well. :smile1:
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    LOL Hi guys, nice to see you. :biggrin1:

    LOL Hi guys, nice to see you. :biggrin1:
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    7,754

    That's the desired result. CD 19 and CD 20 are...

    That's the desired result. CD 19 and CD 20 are genes found on the surface of B cells. Rituximab destroys all the B cells in circulation, so if you want to measure the efficacy of ritux you can...
  15. Replies
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    2,936

    It's a good thing if you can get the Wegs dog...

    It's a good thing if you can get the Wegs dog back to sleep with just a bump in Cellcept and pred.
  16. Thread: Flu vaccines

    by Sangye
    Replies
    119
    Views
    9,571

    There were 2 waves of infection. The first was...

    There were 2 waves of infection. The first was like a typical flu, in that it killed mostly the youngest and the oldest. Then the flu virus mutated and the second wave began, which killed mostly...
  17. Replies
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    91,802

    Sending you love and prayers, Alysia. May you...

    Sending you love and prayers, Alysia. May you find peace and be well.
  18. Thread: Flu vaccines

    by Sangye
    Replies
    119
    Views
    9,571

    Often people assume that adverse effects from a...

    Often people assume that adverse effects from a vaccine will be evident immediately and that if they don't experience this they must be in the clear. While vaccines certainly can cause severe adverse...
  19. Thread: Flu vaccines

    by Sangye
    Replies
    119
    Views
    9,571

    The world was engaged in (and recovering from)...

    The world was engaged in (and recovering from) WWI at the time, with massive populations having been suffering from malnutrition, extraordinary stress, insufficient heating, etc... for several years...
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    I think it's a wonderful idea. Thank you for...

    I think it's a wonderful idea. Thank you for presenting it, Hammy
  21. Replies
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    Fantastic idea, Hammy. I remember when Jack died...

    Fantastic idea, Hammy. I remember when Jack died we all changed our avatars to Leonard Cohens. :smile1:
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    91,802

    I'm devastated to hear this. Phil was part of our...

    I'm devastated to hear this. Phil was part of our original group here, back when there weren't too many of us and we were like a close family. We all used to check in with each other every morning...
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    91,802

    Oh no, how scary. :sad::sad:

    Oh no, how scary. :sad::sad:
  24. Replies
    951
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    91,802

    Sleeping in the ICU is very difficult due to the...

    Sleeping in the ICU is very difficult due to the constant lights and noise. He might just be needing extra sleep because he hasn't gotten enough. mrtmeo is right-- sleep is necessary for healing....
  25. Replies
    951
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    91,802

    Oh man, progressive scarring (progressive...

    Oh man, progressive scarring (progressive fibrosis) is terrifying. I pray it's not that. It can be very difficult to tell Wegs from infection. It's happened to me a number of times. This is a lot for...
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