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    Re: hearing and vision loss

    I think you 're doing great at the age of 80 :wink1:

    About the hearing loss: I once lost my hearing for about three weeks. That was years prior to the diagnosis of Wegs.
    Luckily I got all my...
  2. Thread: Donations

    by chrisTIn@
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    Re: Donations

    I missed your birthday, Andrew, but thanks to vDub's posting I sent you a donation today.
    I hope you received it...:smile1:

    Congratulations!
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    Re: RTX and heart damage

    I'm not familiar with RTX treatment, but it's good to know that your rheumatologist does'nt want to take any risks!
    I hope you'll let us know if and when you 'll start the treatment...
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    Re: Recurrent styes

    Hello D.B.

    I didn't know what a stye is, but I saw online that Mayo Clinic calls it an eye infection.

    When you have been in remission for ten years I can imagine that this infection worries...
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    Re: Happy Birthdays Thread

    Happy Birthday Michelle, I hope you have a nice day, and that you and your family are doing ok :smile:

    Before today I never saw that this thread was started by Alysia on your birthday six years...
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    Re: Losing patience / covid

    I haven't had Covid since the onset of the pandemic. I took all the vaccinations, and all went pretty well.
    But a few weeks ago I had a terrible headache, and a stuffed nose.
    I did a test, and it...
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    Re: New here! Questions about possible GPA

    Initially not. But later on I started having nosebleeds and crustings.
    I was very tired all of the time, and I had so much joint pain that at some point I could hardly walk.

    During treatment...
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    Re: New here! Questions about possible GPA

    Hi Chelly,
    Welcome here.
    Pete has given you quite some information, I think.
    I hope the rheumatologist wil be answering most of your questions soon, and that you 'll get everything sorted out.
    ...
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    Merry Christmas...

    I'd like to wish everybody a Happy Christmas, and a good start of 2023!
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    Re: Happy Birthdays Thread

    Happy Birthday, Andrew! :thumbup::biggrin1:
    I hope you have a nice day...
  11. Re: Hopkins since renal development not being seen in vasculitis center

    I'm not visiting the John Hopkins, but I know some other people on the forum did, and were very positive about it!
    Maybe you can use 'advanced search' (on top of this page, at the right).
    In older...
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    Re: How are you doing ?

    Little sister and tmesis, I'm sorry to hear that you both feel so crappy. I sure hope you will find the care you need, and recover soon!
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    Re: Bad Smell and taste During GPA

    Very well put, mishb!
    I recognise that particular smell from my first years since diagnosis.
    I was not yet capable to remark infections in my sinuses.
    Nowadays I can, and rinsing indeed helps a...
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    Re: Bad Smell and taste During GPA

    My smell and tasteproblems have disappeared since I went to a medicinefree remission.
    From time to time however, I have flare-ups.

    I can tell when a flare is coming up, because my ability to...
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    Re: lumps on back of leg and one on foot

    Hi Meredith. I'm sorry, but I cannot help you. I don't know what your lumps look like, and what could have caused them.
    I hope you can have it checked again by a doctor, if it keeps on bothering...
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    Re: Happy Birthdays Thread

    Happy anniversary Annekat!
  17. Re: Some questions my doctor hasn't answered (well a lot of questions LOL)

    I recognize the weightloss that you mention.
    Prior to my diagnose of GPA I also lost weight.
    After proper treatment my bodyweight became 'normal' for my lenght again.
    I am even a few pounds...
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    Re: Let's talk about "limited" Wegeners...

    You're so right, drz!
    No-one can can define better what it's like to deal with auto-immune diseases than you do.
    It's wonderfull to see you writing here on the forum again...:thumbsup:
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    Re: Vancouver, BC, Canada?

    I cannot help you with a supportgroup in Vancouver, but I hope you 'll be able to talk to your doctor soon.
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    Re: Hi I'm Arlene and I'm new here!

    Hi Arlene.
    Welcome here.
    One day at a time is always a good idea ;)

    I hope you 'll soon feel better!
  21. Re: Happy birthday wegeners-granulomatosis.com!!

    I had to search this site for 'The Gorrilaz', Marta. Now I know it's a Britisch rock group, haha.
    Jack sure was a precious member of this group, he wrote me messages I will never forget......
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    Re: Most Likely Diagnosis is WG/GPA

    I know nosebleeds and sometimes saddle-nose are symptoms of GPA.
    I did have the nosebleeds, but was lucky enhough not to develope a saddle-nose, for which I was quite scared of in the beginning.
    ...
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    Re: Let's talk about "limited" Wegeners...

    I think 'limited' refers to forms of GPA that did not affect any major organ, especially the kidneys.

    The symptoms I have are mostly limited to the nose and sinuses, and exist of 'stuffed...
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    Re: Happy Birthdays Thread

    Happy Birthday Mishb/Michelle!

    :thumbsup:

    I hope you have a nice day, and a whole lot of Birthdaycake...
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    Forum activity

    Hi forum members and readers,

    It has been months now that the number of new topics seem to decrease.
    Still I see that the forum is used quite a lot, most of the time nearly a thousand people are...
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