Hi Pete,
I tapered really slow and was feeling pretty good in October & November. Started getting gradual joint pain and saw my doctor on Dec 13 and felt pretty good. My joint pain has gotten...
Type: Posts; User: mich911
Hi Pete,
I tapered really slow and was feeling pretty good in October & November. Started getting gradual joint pain and saw my doctor on Dec 13 and felt pretty good. My joint pain has gotten...
Hi everyone,
Was diagnosed with WG June 2016. I was on high doses of Prednisone and had about 4 rituxan treatments. My last treatment was Oct. 2, 2017. The treatments have helped but since...
Hi, I was diagnosed with Wegs in April 2016 since then I've been on predisone & 4 rounds, once a week of Rituxan & one maintenance treatment this past April. I'm getting another maintenance...
Hi Everyone,
So its been a long summer and I've had four rituxan treatments and have been tapering down on Prednisone from 40mg to currently 5mg. I'm feeling ok not 100%. Still not in remission...
Hi,
Hope your treatment went well yesterday. I have had two rtx treatments and my third is Monday. So far I've had no problems and have tolerated the treatments pretty good. Just very tired...
Hi Blu4runner,
Hope your treatment went well yesterday. I was at UPENN yesterday also for my follow up appt with Dr. Sreih. If I knew I would have stop by to say hello:)
Michelle
Hi,
I've had two doses of Rituxan, a week apart from each other and I'll be getting my third on Monday. I'm also tapering down on the predisone so now I'm on 10mg. Does Rituxan make you feel...
Hi Tom,
Thanks for the WEG BVAS eval!! That will definitely be helpful. My Wegs involvement is in my nasal passages and has not advanced to my lungs or Kidneys but it probably would eventually if...
[QUOTE=blu4runner;107727]I have to start my Rituximab treatments again due to a flare and I will be at UPenn this Friday for the first infusion. I'm on 60mg of prednisone and we will discuss the...
Hi,
Glad to hear you are not having any issues with the treatments. Makes me feel so more at ease for Monday. My appointment is at 8:00am so I'm expecting to be there all day. You are so right...
Hi Pete,
Yes I did hear about tapering slowly. The doctor actually told me to taper every two weeks 10mg but I'll be seeing him again on Aug. 5 for follow up and I'll ask him about it. I couldn't...
Hello everyone!!
I finally got approval for 4 rituxan treatments and the first one starts on this Monday at UPENN. Hopefully everything will go well & not have too many side effects. Being on...
Specialist name: /Dr. Antoine Sreih
Location (Country/State/City): University of PENN
Area of specialisation: Rheumatologist, Vasculitis
Hi Alysia,
Yes my WG doctor did prescribe the pneumonia shot and he said get it immediately so I did get it yesterday. My RTX treatments probably won't start until July. UPenn has to get...
Thank you everyone!! It makes me feel so much better discussing this with people who are familiar with the disease and have gone through the treatment. I'm so happy to have found this support...
Hi everyone,
I finally got to see my specialist Dr. Sreih at UPENN yesterday. He is the most professional, compassionate doctor I've ever met. He spend about 1 1/2 hrs with me & my husband going...
You are so right!! I need to get effective treatment to stop the progression of this disease. It's the only way. Also, good advice about calling in to see if there are any cancellations. The...
Thanks for the advice! I'm so nervous about the treatment plan. I know these medicines are hard on the body and it scares me that I will be really sick on them. But I know I need to get treatment...
Hi Anne, I really praying that they can diagnose me without the biospy. June 17 seems so far away and I'm concerned with this recent symptom of numbness in my right foot/ankle. Been numb for a...
Hi blu4runner,
Good to hear that Dr. Sreih is a great doctor and that he works closely with Dr. Merkel because he the ultimate expert in WG. I need all the help I can get to feel better.
Thanks guys for the advice!! I was also wondering why they did the nasal biospy. I did actually question my local Rheumatologist and he insisted on the biospy. As of current I'm not having any lung...
Well, just received news that my nasal biospy was benign. Non specific to Wegeners. The last piece of the puzzle doesn't fit. I have a positive c-anca, sed rate is sky high, rheumatory fator and I...
Hi DRZ,
It was really painful and there were cramps that came in intervals. It ran up my leg. I finally felt better after taking my two advils & then two tylenol an hour later. However my foot...
Thanks so much Pete for the information. I'm going to check it out:)
Hi everyone,
Maybe someone can give me some insight. Today I have a numbness in my right foot on the side where my ankle is and the numbness is going a little up my leg. Has anyone experienced...